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Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity
We are excited to offer two people the opportunity to represent Hypersomnolence Australia at this year's Sleep DownUnder Conference.
Michelle Chadwick
Mar 173 min read
Call to action - Support for funding for a CDH Patient Registry
Attention Australians Living with Central Disorders of Hypersomnolence (CDH) ie: Narcolepsy, Idiopathic Hypersomnia, and Kleine-Levin Syndro
Michelle Chadwick
Feb 62 min read
Sleep DownUnder 2024 - Update
Last year, I noted that the recent attention on Idiopathic Hypersomnia and narcolepsy, both globally and in Australia, has been...
Michelle Chadwick
Nov 22, 20246 min read
How can I improve my quality of life?
Idiopathic Hypersomnia - How can I improve my quality of life?
Michelle Chadwick
May 21, 202417 min read
Living with IH Global Support Groups
Are you looking for support or to meet (online) and chat with others living with IH? In 2020 we started LIVING WITH IDIOPATHIC...
Michelle Chadwick
Mar 19, 20242 min read
IHAW - Ways to Participate
The Idiopathic Hypersomnia Awareness Week is 1-7 June! We encourage everyone to participate. Whether you have a lot of time or just a...
Michelle Chadwick
Mar 7, 20242 min read
New date and collaboration for the IH Awareness Week
The Idiopathic Hypersomnia Awareness Week is moving to June 1-7 ! Note: This is a permanent move. The IHAW will be 1-7 June every year....
Michelle Chadwick
Mar 5, 20241 min read
Living with IH - Share Your Experience Project
Why should you get involved? Raising awareness plays a crucial role in bringing attention to Idiopathic Hypersomnia (IH) and the...
Michelle Chadwick
Mar 4, 20242 min read
RARE DISEASE DAY
Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases. Idiopathic Hypersomnia is a rare...
Michelle Chadwick
Feb 27, 20243 min read
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Top Tips for Living with Hypersomnia
Top Tips for Living with Hypersomnia. Practical advice for Patients, Carers, and treating Doctors.
Idiopathic Hypersomnia - Advocacy and Awareness
During the Idiopathic Hypersomnia & Narcolepsy Education Day in April this year, we discussed what was needed for Idiopathic Hypersomnia...
Idiopathic Hypersomnia & Narcolepsy Education Day VIDEOS
Idiopathic Hypersomnia & Narcolepsy Education Day WATCH the videos!
Xywav: Does first to approval mean first-line treatment?
Xywav: Does first to approval mean first-line treatment? What does an expert say?
Living with IH in Australia Survey
One of the things Hypersomnolence Australia does is advocate for people with Idiopathic Hypersomnia (IH). This is done in various ways...
When waking up is the hardest thing you do every day
What is sleep inertia and sleep drunkenness and how are they different?
Idiopathic Hypersomnia & Narcolepsy Education Day
This event was originally planned for October 2021 it has been postponed to 10th April 2022 10th APRIL 2022 Brisbane Convention &...
HA Supporters Program
When we set out we decided not to charge membership because we understand that not everyone can afford to pay for information and support...
Living with IH Community Group
We asked you and you told us what you wanted. Hypersomnolence Australia has now created ongoing support meetings.
Bedrich Roth: Pioneer in Sleep Medicine
I'm a published author in a medical journal! From a personal stand point, as someone living with IH, I'm proud of that but I also feel a...
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