Idiopathic Hypersomnia & Narcolepsy Education Day VIDEOS
What is Idiopathic Hypersomnia and how does it differ from Narcolepsy type 2 and IH without long sleep?
Where are researchers up to with regards to research re: causes, diagnostics, and treatment?
Why is Australia so far behind and what can be done about it? What are the challenges and potential solutions re; access and availability of medications to treat central disorders of hypersomnolence?
Learn about how to implement and maintain practical strategies for coping with a chronic illness. Hear about the benefits of reaching acceptance and what that means.
Join Professors Yves Dauvilliers and Ron Grunstein, Dr David Cunnington, Dr Sara Winter
and others as we discuss all this and more! Watch the videos here https://www.hypersomnolenceaustralia.org.au/ihnarcolepsyeducationday You can also find them on YouTube.
Researchers and clinicians in Australia receive very little or no education with regard to narcolepsy and disorders of hypersomnolence. This lack of knowledge and understanding has direct negative health outcomes for sufferers including delayed diagnosis and treatment. Our Education Day was a unique opportunity designed for medical and allied health care professionals, people suffering from disorders of hypersomnolence, and their family and friends to learn more about these disorders from our invited speakers and from each other.
We did not receive any funding for the IH & Narcolepsy Education Day, indeed we do not receive any funding at all. We rely on the generous donations of our supporters to do the very important work that we do. We would very much like to do another event like this in another city but we can't do that without your support. If you would like to help us continue with our advocacy and awareness please consider donating. No amount is too small. And as Hypersomnolence Australia is a registered not for profit charity, all donations over $2 are tax deductible. You can donate via our PayPal Giving Fund or via direct deposit, our bank details are: BSB 014286 Account No. 210329584