Idiopathic Hypersomnia Day (IH Day) is a global awareness day focused on increasing understanding of idiopathic hypersomnia (IH). IH Day is an opportunity to raise awareness, share lived experience, challenge misconceptions, and build greater understanding of what it is really like to live with IH. Increased awareness is a critical step toward improving diagnosis, access to treatment, and quality of life. Hypersomnolence Australia is proud to continue this work as part of a global effort, in...

and why is Sodium Oxybate is not TGA registered (approved) or PBS listed? Update – November 2025 The supply arrangements for Xyrem® (sodium oxybate) in Australia have recently changed. UCB Pharma, the company that has been importing and supplying Xyrem® under the Therapeutic Goods Administration (TGA) Special Access Scheme (SAS), has confirmed that they can no longer continue supply due to global distribution changes made by the manufacturer, Jazz Pharmaceuticals. To prevent treatment...

Guidance for Health Professionals supporting individuals with Narcolepsy and Idiopathic Hypersomnia The relief individuals may experience when diagnosed with narcolepsy and idiopathic hypersomnia, the confirmation that they have a genuine disorder, is often short-lived. This document aims to guide health professionals in helping individuals prepare for this adjustment and support them in managing their expectations. Click here to download a copy of this information. Discussing the...