and why is Sodium Oxybate is not TGA registered (approved) or PBS listed? Update – November 2025 The supply arrangements for Xyrem® (sodium oxybate) in Australia have recently changed. UCB Pharma, the company that has been importing and supplying Xyrem® under the Therapeutic Goods Administration (TGA) Special Access Scheme (SAS), has confirmed that they can no longer continue supply due to global distribution changes made by the manufacturer, Jazz Pharmaceuticals. To prevent treatment...

Guidance for Health Professionals supporting individuals with Narcolepsy and Idiopathic Hypersomnia The relief individuals may experience when diagnosed with narcolepsy and idiopathic hypersomnia, the confirmation that they have a genuine disorder, is often short-lived. This document aims to guide health professionals in helping individuals prepare for this adjustment and support them in managing their expectations. Click here  to download a copy of this information. Discussing the...

Top Tips for Living with Hypersomnia. Practical advice for Patients, Carers, and treating Doctors.