Get Involved
Your lived experience can drive real change.
There are many ways to get involved and help improve understanding, visibility, and support for people living with Idiopathic Hypersomnia and Narcolepsy. Whether you want to share your story, contribute to national data, volunteer, raise awareness, or stay connected, every action helps strengthen our community and drive meaningful change.
DARE-PX: Patient Experience Registry
Launching in 2026
Contribute your lived experience to Australia’s first national registry for Central Disorders of Hypersomnolence (CDH) including, Idiopathic Hypersomnia, Narcolepsy, and KLS. Your insights will help improve diagnosis, services, and long-term outcomes.
Donate
Hypersomnolence Australia does not receive funding, and we don’t charge membership fees. Every donation directly supports our education, advocacy, and data initiatives that improve understanding and care for people living with Idiopathic Hypersomnia and Narcolepsy.
or Direct Deposit - PayID: info@hypersomnolenceaustralia.org.au
The Trustee for Hypersomnolence Australia is endorsed as a Deductible Gift Recipient (DGR).
ALL DONATIONS OVER $2 ARE TAX DEDUCTIBLE
Volunteer or become an Advocate
Use your skills to make a difference. Whether it’s helping with social media, content creation, communications, or community outreach, your contribution supports people living with Idiopathic Hypersomnia and Narcolepsy and helps strengthen awareness, connection, and understanding among the public and healthcare professionals.