Resources on a range of topics relevant to Living Idiopathic Hypersomnia and Narcolepsy. Check back here regularly as we add to our library.
Idiopathic Hypersomnia Factsheet - Click here to view and download a copy of our IH Factsheet.
Our Factsheet was written by HA's director Michelle Chadwick and has been vetted and is endorsed by Professor Ron Grunstein, MBBS, MD, PhD, FRACP, and international Idiopathic Hypersomnia researcher Professor Karel Šonka MD, DSc.
Narcolepsy Factsheet - Click here to view and download a copy of our Narcolepsy Factsheet.
Our Factsheet has been vetted and is endorsed by Professor Ron Grunstein, MBBS, MD, PhD, FRACP.
'LIFE AFTER DIAGNOSIS - Insights into how to live your best life' is a 3 part presentation and discussion on ‘Improving overall health and wellbeing and how that can have a positive impact on managing IH symptoms’. There are detailed PDF's available that include the words and the slides from the presentations and much more information. You can find links to those PDFs here.
What is sleep drunkenness/sleep inertia? - read our news post When waking up is the hardest thing you do every day.
Top Tips for Living with Hypersomnia - Practical advice for people living with idiopathic hypersomnia and narcolepsy, and their carers, and treating doctors.
Diagnosis to Aftercare - Practical advice for treating doctors of patients with Narcolepsy & Idiopathic Hypersomnia emphasising patient support and medication management. If you are a health professional this document will help you improve the lives of your patients living with Idiopathic Hypersomnia or Narcolepsy.
IH PATIENT REGISTRY - Have you been diagnosed with Idiopathic Hypersomnia and live in Australia or NZ?
Hypersomnolence Australia holds the only patient registry of people diagnosed with Idiopathic Hypersomnia in Australia. Click here to learn more.
Looking for support or to connect with others Living with Idiopathic Hypersomnia and Narcolepsy? Learn about our Living with IH and Living with Narcolepsy community groups.
Looking for stories and perspectives written by people living with IH or people living with Narcolepsy? Our Living with IH and Living with Narcolepsy pages are a place where you will find stories and other expressions by people living with Idiopathic Hypersomnia and Narcolepsy. We hope that their stories will help you on your journey.
Interested in advocacy and awareness? Our Central Disorders of Hypersomnolence (CDH) Advocacy and Awareness Registry is a unique resource for those in the Narcolepsy and Idiopathic Hypersomnia communities. Here, you can register for opportunities to participate in advocacy and awareness initiatives to support causes that matter to you. Whether you're interested in research, raising awareness, providing support, or taking action, this is the place to start. Learn more.
Want to write to policymakers? Click here for information that can help.
Dexamphetamine - read our news post "Why is my Dex not working"? This information is also relevant to other amphetamine-based medications, eg; methylphenidate (Ritalin).
Modafinil and Armodafinil - read our news post "Modafinil/Armodafinil - Birth Control and Pregnancy"
Electrolytes and Dehydration - people with Idiopathic Hypersomnia (IH) and narcolepsy are particularly susceptible to dehydration and therefore electrolyte imbalances. Learn how this can make hypersomnia symptoms worse or more difficult to manage - and how to avoid it.
What is a Multiple Sleep Latency Test (MSLT), and what it does and doesn't tell a sleep physician.
Do you feel tired all the time no matter how much sleep you get? The list of possible causes of excessive daytime sleepiness spans virtually every major area of medicine, neurology and psychiatry. A clear, detailed history is invaluable in negotiating these numerous diagnostic considerations. To assist patients and doctors when considering the cause of daytime sleepiness we have compiled a list of known causes and routine tests.
Know your Workplace Rights
We are sometimes asked what rights people with Idiopathic Hypersomnia and Narcolepsy have in the workplace. This is a guide. For more information contact the FairWork Ombudsman.
We do not receive funding and charge no membership. We are able to make the videos of our presentations and other resources available for free due the generosity of our few loyal supporters. If you can make a donation to help support our efforts - which will lead to more resources, please do so here, no amount is too small. All donations over $2 are tax deductible.
The Trustee for Hypersomnolence Australia is endorsed as a Deductible Gift Recipient (DGR) from 01 Jul 2013. It is covered by Item 1 of the table in section 30-15 of the Income Tax Assessment Act 1997 ABN: 19662120036