Can Physical Activity Help Manage Narcolepsy and Idiopathic Hypersomnia?
Researchers at the University of Sydney are conducting a research study about central disorders of hypersomnolence (HS), including narcolepsy (type 1 and type 2) and idiopathic hypersomnia.
Research Study: Exploring the scope of physical activity for the management of hypersomnolence – a mixed-methods study.
This will involve both completing a number of surveys and participating in a semi-structured interview.
Current research shows that narcolepsy (type 1 and type 2) and idiopathic hypersomnia negatively affect health related quality of life, and that there is an increased risk of both psychological and physical conditions, such as depression, anxiety and obesity.
People with hypersomnolence have been shown to have reduced cardiovascular fitness and physical activity compared to controls, and exercise is mentioned in several surveys as a strategy to manage these conditions, but with limited success.
No studies have explored an exercise program for hypersomnolence. This mixed methods study will aim to explore the scope of physical activity and exercise in the context of people with hypersomnolence through conducting and analysing semi-structured interviews. WHO CAN TAKE PART IN THE STUDY?
Adults 18 years or older with a confirmed medical diagnosis of either NT1, NT2 or IH.
Note: In the event that a medical diagnosis cannot be confirmed you will be asked to
contact your GP for confirmation and will be held from participation in the study until
confirmation has been obtained.
However, participants (even if they have a medical diagnosis of either NT1, NT2 or IH) who meet any of the following would be excluded from participating in the study:
1. Have been diagnosed with an untreated or unstable sleep condition that would further affect your sleep health.
2. Are unable to speak English.
3. Are unable to provide informed consent.
4. Do not have a reliable internet connection WHAT DOES THIS INVOLVE FOR ME?
You would need to complete a series of surveys and participate in an interview on Zoom (online). It is expected this will take somewhere between 1.5 - 2 hours total. For more information please contact Jeff Doukakis at jdou6654@uni.sydney.edu.au