IDIOPATHIC HYPERSOMNIA & NARCOLEPSY 
EDUCATION DAY

The weekend of 9-10 April 2022 became a hub for sleep medicine and education with the first ever FREE Sleep Health & Wellbeing Expo on Saturday 9th April followed by the Idiopathic Hypersomnia and Narcolepsy Education Day on Sunday 10th April at the Brisbane Convention and Exhibition Centre.

 

Researchers and clinicians in Australia receive very little or no education with regard to narcolepsy and disorders of hypersomnolence. This lack of knowledge and understanding has direct negative health outcomes for sufferers including delayed diagnosis and treatment. Our Education Day was a unique opportunity designed for medical and allied health care professionals, people suffering from disorders of hypersomnolence, and their family and friends to learn more about these disorders from our invited speakers and from each other. 

We did not receive funding to help us with this event. We do not receive funding at all. We have been able to make the videos of these presentations available for free via the generosity of our few loyal supporters. If you can make a donation to help support our efforts please do so here, no amount is too small. All donations over $2 are tax deductible.

The Trustee for Hypersomnolence Australia is endorsed as a Deductible Gift Recipient (DGR) from 01 Jul 2013. It is covered by Item 1 of the table in section 30-15 of the Income Tax Assessment Act 1997  ABN: 19662120036

 

What Is Idiopathic Hypersomnia? - Prof. Yves Dauvilliers
40:20

What Is Idiopathic Hypersomnia? - Prof. Yves Dauvilliers

Prof. Yves Dauvilliers explains what Idiopathic Hypersomnia is and how it differs from narcolepsy. Yves Dauvilliers is a Professor of Neurology and Physiology at the University of Montpellier, France. He obtained his MD in neurology in 2000 (Montpellier) and his PhD in neurosciences in 2004 (Montpellier). Since 2005, Prof Dauvilliers has been the Head of the clinical and research activity of the sleep laboratory at the University of Montpellier and the Director of the Sleep Disorders Centre, Department of Neurology, Gui de Chauliac Hospital, Montpellier. He is a member of the Clinical Research Department, University Hospital, Montpellier, of the scientific board of the University of Montpellier, and an associate coordinator of the Gui-de-Chauliac University Hospital. He is also a member of the research group INSERM U1061 and coordinator of the Sleep research axis. His research focuses on the diagnosis, epidemiology, pathophysiology and therapy of several sleep disorders, mainly neurological disorders including narcolepsy but also other central hypersomnias, parasomnias and restless legs syndrome (RLS). He has been the Principal Investigator in several open and placebo-controlled national and multi-national clinical trials in sleep disorders on narcolepsy, hypersomnia, RLS, and insomnia. Since 2006, Prof Dauvilliers has been the coordinator of the French National Reference Network for Orphan Diseases (Narcolepsy, Hypersomnia, Kleine-Levin Syndrome). He is a member of the scientific board of the French Sleep Medicine and Research Society, the European Sleep Research Society, the European-Narcolepsy Network, the International REM sleep behavior study group, and the American Academy of Sleep Medicine (Co-chair of the Narcolepsy section). Prof Dauvilliers is also part of the Editorial Board of Sleep Medicine and Sleep and Specialty Chief Editor of Frontiers in Neurology – Sleep and Chronobiology. He is the author or co-author of more than 250 papers published in international and national peer-reviewed journals, several book chapters, and he also edited two French books related to sleep medicine. 
Overview of Current Idiopathic Hypersomnia and Narcolepsy Research - Causes, Diagnostics, Treatment. - Prof. Yves Dauvilliers
31:43

Overview of Current Idiopathic Hypersomnia and Narcolepsy Research - Causes, Diagnostics, Treatment. - Prof. Yves Dauvilliers

Prof. Yves Dauvilliers gives an overview of current Idiopathic Hypersomnia and Narcolepsy research. Causes, diagnostics, and treatment. Yves Dauvilliers is a Professor of Neurology and Physiology at the University of Montpellier, France. He obtained his MD in neurology in 2000 (Montpellier) and his PhD in neurosciences in 2004 (Montpellier). Since 2005, Prof Dauvilliers has been the Head of the clinical and research activity of the sleep laboratory at the University of Montpellier and the Director of the Sleep Disorders Centre, Department of Neurology, Gui de Chauliac Hospital, Montpellier. He is a member of the Clinical Research Department, University Hospital, Montpellier, of the scientific board of the University of Montpellier, and an associate coordinator of the Gui-de-Chauliac University Hospital. He is also a member of the research group INSERM U1061 and coordinator of the Sleep research axis. His research focuses on the diagnosis, epidemiology, pathophysiology and therapy of several sleep disorders, mainly neurological disorders including narcolepsy but also other central hypersomnias, parasomnias and restless legs syndrome (RLS). He has been the Principal Investigator in several open and placebo-controlled national and multi-national clinical trials in sleep disorders on narcolepsy, hypersomnia, RLS, and insomnia. Since 2006, Prof Dauvilliers has been the coordinator of the French National Reference Network for Orphan Diseases (Narcolepsy, Hypersomnia, Kleine-Levin Syndrome). He is a member of the scientific board of the French Sleep Medicine and Research Society, the European Sleep Research Society, the European-Narcolepsy Network, the International REM sleep behavior study group, and the American Academy of Sleep Medicine (Co-chair of the Narcolepsy section). Prof Dauvilliers is also part of the Editorial Board of Sleep Medicine and Sleep and Specialty Chief Editor of Frontiers in Neurology – Sleep and Chronobiology. He is the author or co-author of more than 250 papers published in international and national peer-reviewed journals, several book chapters, and he also edited two French books related to sleep medicine. 
Why is Australia so far behind the rest of the world? What can be done about it? - Prof. Ron Grunstein