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Idiopathic Hypersomnia & Narcolepsy
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FEATURED POSTS
How to access Sodium Oxybate in Australia
and why is Sodium Oxybate is not TGA registered (approved) or PBS listed? Update – November 2025 The supply arrangements for Xyrem® (sodium oxybate) in Australia have recently changed. UCB Pharma, the company that has been importing and supplying Xyrem® under the Therapeutic Goods Administration (TGA) Special Access Scheme (SAS), has confirmed that they can no longer continue supply due to global distribution changes made by the manufacturer, Jazz Pharmaceuticals. To prevent
Michelle Chadwick
Nov 87 min read
From Diagnosis to Aftercare
Guidance for Health Professionals supporting individuals with Narcolepsy and Idiopathic Hypersomnia The relief individuals may experience when diagnosed with narcolepsy and idiopathic hypersomnia, the confirmation that they have a genuine disorder, is often short-lived. This document aims to guide health professionals in helping individuals prepare for this adjustment and support them in managing their expectations. Click here to download a copy of this information. Discus
Michelle Chadwick
Nov 34 min read
Top Tips for Living with Hypersomnia
Top Tips for Living with Hypersomnia. Practical advice for Patients, Carers, and treating Doctors.
Michelle Chadwick
Nov 35 min read
Update on Xyrem® (Sodium Oxybate) Supply in Australia
Many people living with Narcolepsy or Idiopathic Hypersomnia (IH) have been asking what’s happening with Xyrem® (sodium oxybate) supply in Australia. I have met with representatives from UCB Pharma and also communicated directly with MedSurge, the company now supporting supply. Here’s what we can confirm - and why you can still access treatment. What’s happening UCB Pharma, who have been importing and supplying Xyrem® in Australia under the TGA’s Special Access Scheme (SAS)
Michelle Chadwick
Oct 312 min read
Sleep DownUnder 2025 Highlights
From the perspective of Central Disorders of Hypersomnolence - Idiopathic Hypersomnia & Narcolepsy
Michelle Chadwick
Oct 2521 min read
Insights from a 10-Year Australasian Idiopathic Hypersomnia Patient Data Registry Study
This is the first registry study of patients with IH in Australia and NZ. It demonstrates the value of patient registries to better…
Michelle Chadwick
Sep 37 min read
Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity
We are excited to offer two people the opportunity to represent Hypersomnolence Australia at this year's Sleep DownUnder Conference.
Michelle Chadwick
Mar 173 min read
Sleep DownUnder 2024 - Update
Last year, I noted that the recent attention on Idiopathic Hypersomnia and narcolepsy, both globally and in Australia, has been...
Michelle Chadwick
Nov 22, 20246 min read
How can I improve my quality of life?
Idiopathic Hypersomnia - How can I improve my quality of life?
Michelle Chadwick
May 21, 202417 min read
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Electrolytes and Dehydration
Reducing carbohydrates in our diet can have a positive impact on overall health and wellbeing. It may also help improve our ability to manage symptoms of Idiopathic Hypersomnia (IH) and Narcolepsy. Carbohydrates act much like sugar in the body — causing spikes in blood glucose that are followed by dips. Those dips often trigger the familiar afternoon crashes, which are the last thing people with IH or narcolepsy need! One of the most important things to keep in mind when foll
RESEARCH STUDY - Physical Activity and Hypersomnolence
Can Physical Activity Help Manage Narcolepsy and Idiopathic Hypersomnia? Researchers at the University of Sydney are conducting a...
What is Cognitive Behaviour Therapy for Hypersomnia (CBT-H), and can it help you?
What is Cognitive Behaviour Therapy for Hypersomnia (CBT-H), and can it help you? Find out with Dr Sara Winter
Could your daily hit of caffeine be masking a sleep disorder?
Caffeine can be very effective for improving your concentration, alertness and energy. However, if you consume caffeine on a daily basis...
Daytime Sleepiness – Finding the Cause
Do you feel tired all the time no matter how much sleep you get? Daytime sleepiness has a significant impact on quality of life. People...
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