Social Media Tool Kit
Overview: Thank you for choosing to share about the Worldwide Idiopathic Hypersomnia Awareness Week. Below is background information, suggested copy, and image options.
About the Idiopathic Hypersomnia Awareness Week:
Idiopathic Hypersomnia Awareness Week (IH Awareness Week), 1–7 June, champions global awareness and understanding of Idiopathic Hypersomnia (IH). It empowers the IH community to share their experiences and elevates their voices.
Hypersomnolence Australia first launched the IH Awareness Week in 2013. Since its inception, the IH Awareness Week has united the IH community across 15 countries, fostering awareness and promoting education about IH. The IHAW has translated awareness infographics into 13 different languages.
IH Awareness Week is collaborating with IH Day, led by the Hypersomnia Foundation. The IH Awareness Week will start with the IH Day on June 1st and conclude on June 7th, 2024. We are grateful to be partnering with the Hypersomnia Foundation.
Together, we hope this collaborative action will accelerate the diagnosis process, advance research to find the cause and reduce stigma.
Have Questions?:
Go to the IH Awareness Week webpage for more information and participate in our IH Awareness Week initiatives.
Email: ihaweek@gmail.com
Idiopathic Hypersomnia Awareness Week’s socials:
Instagram: @ihaweek | Facebook: @ihaweek | X (Twitter): @ihaweek
Hypersomnolence Australia’s socials:
Instagram: @hypersomnolence_australia | Facebook: @hypersomnolenceaustralia
X (Twitter): @HyperSleep | LinkedIn: @hypersomnolence-australia
Please see suggested social media copy and images you can use below.
Suggested Social Media Copy
For Individuals
Tag: Instagram: @ihaweek & @hypersomnolence_australia
Facebook: @ihaweek & @hypersomnolenceaustralia | LinkedIn: @hypersomnolence-australia
Suggested images to use with your post below.
Copy for Instagram, Facebook, and LinkedIn:
Join the Idiopathic Hypersomnia community to spread awareness and celebrate the Worldwide Idiopathic Hypersomnia Awareness Week, 1-7 June 2024. The IH Awareness Week champions global awareness and understanding of Idiopathic Hypersomnia (IH). It empowers the IH community to share their experiences and elevates their voices. Together we hope this collaborative action will accelerate the diagnosis process, advance research to find the cause, and reduce stigma.
Did you know that Idiopathic Hypersomnia (IH) is a long-lasting (chronic) sleep disorder of the brain? IH affects the brain’s ability to control sleep and wakefulness. IH causes excessive daytime sleepiness (EDS). This means an inability to stay awake or strong need to sleep during the day. It happens even with enough sleep the night before.
People with IH often struggle to wake up. They spend most of their day either sleeping or thinking about, craving, or fighting the urge to sleep. This can severely impact their quality of life.
To learn more about Idiopathic Hypersomnia and participate in the IH Awareness Week, go to - https://bit.ly/4diZUgE
#LivingwithIH #ThisIsIH
#LivingwithIdiopathichypersomnia
#IdiopathicHypersomniaAwareness
#IdiopathicHypersomnia
Copy for X (formerly Twitter)
Idiopathic Hypersomnia causes more than sleepiness. #ThisIsIH
Join the @ihaweek 1-7 June to spread awareness and celebrate Idiopathic Hypersomnia Awareness Week.
To learn more about #IdiopathicHypersomnia & participate in the IH Awareness Week: https://bit.ly/4diZUgE
For Organisations
Tag: Instagram: @ihaweek & @hypersomnolence_australia
Facebook: @ihaweek & @hypersomnolenceaustralia | LinkedIn: @hypersomnolence-australia
Suggested images to use with your post below.
Copy for Instagram, Facebook, and LinkedIn:
Join the Idiopathic Hypersomnia community to spread awareness and celebrate the Worldwide Idiopathic Hypersomnia Awareness Week, 1-7 June 2024. The IH Awareness Week champions global awareness and understanding of Idiopathic Hypersomnia (IH). It empowers the IH community to share their experiences and elevates their voices. We at [Your Organisation] are grateful to partner with Hypersomnolence Australia in this collaborative action to accelerate the diagnosis process, advance research to find the cause, and reduce stigma.
Did you know that Idiopathic Hypersomnia (IH) is a long-lasting (chronic) sleep disorder of the brain? IH affects the brain’s ability to control sleep and wakefulness. IH causes excessive daytime sleepiness (EDS). This means an inability to stay awake or strong need to sleep during the day. It happens even with enough sleep the night before.
People with IH often struggle to wake up. They spend most of their day either sleeping or thinking about, craving, or fighting the urge to sleep. This can severely impact their quality of life.
To learn more about Idiopathic Hypersomnia and participate in the IH Awareness Week, go to - https://bit.ly/4diZUgE
#LivingwithIH #ThisIsIH
#LivingwithIdiopathichypersomnia
#IdiopathicHypersomniaAwareness
#IdiopathicHypersomnia
Copy for X (formerly Twitter)
Idiopathic Hypersomnia causes more than sleepiness. #ThisIsIH
We are joining @HyperSleep 1-7 June to spread awareness and celebrate IH Awareness Week @ihaweek.
To learn more about #IdiopathicHypersomnia & participate in the IH Awareness Week: https://bit.ly/4diZUgE
If you have any questions about sharing on social media please contact Michelle Chadwick at info@hypersomnolenceaustralia.org.au
Image Options: Click on the image you would like to use and download it.
Change your profile pic - two to choose from
Learn more about the Idiopathic Hypersomnia Awareness Week here.
View and download a copy of the IH Awareness Week Idiopathic Hypersomnia Factsheet
More images to download and share - scroll down to find these posters in various other languages
Click here to download a pdf copy of the poster below.
We are in the process of translating this poster into other languages see below
Explore all of the posters in each language series by clicking the purple images below.
Norwegian
What is Idiopathic Hypersomnia? Hva er idiopatisk hypersomni?
Sleep Drunkenness in Idiopathic Hypersomnia. Søvn Drukkenskap i idiopatisk hypersomni.
IH affects every part of a sufferers life
What is Idiopathic Hypersomnia? Hva er idiopatisk hypersomni?
French
Qu'est-ce que c’est l'hypersomnie idiopathique (HI)? What is Idiopathic Hypersomnia?
Hypersomnie idiopathique: faits sur le traitement Idiopathic Hypersomnia - Facts about Treatment
"La chose la plus difficile que je fais chaque jour est de me réveiller et puis de rester réveillé" Hardest thing I do everyday...
Qu'est-ce que c’est l'hypersomnie idiopathique (HI)? What is Idiopathic Hypersomnia?
Dutch
What is Idiopathic Hypersomnia? Wat is Idiopahtische Hypersomnie?
Sleep Drunkenness in Idiopathic Hypersomnia Slaap dronkenschap bij Idiopathische Hypersomnie
"The hardest thing I do every day" "Het moeilijkste wat ik elke dag doe is wakker worden en wakker blijven."
What is Idiopathic Hypersomnia? Wat is Idiopahtische Hypersomnie?
Polish
What is Idiopathic Hypersomnia Czym Jest Hipersomnia Idiopatyczna (IH)?
Sleep Drunkenness in Idiopathic Hypersomnia Bezwładność Senna w Hipersomnii Idiopatycznej
IDIOPATHIC HYPERSOMNIA CAUSES MORE THAN JUST SLEEPINESS HIPERSOMNIA IDIOPATYCZNA TO NIE TYLKO NADMIERNA SENNOŚĆ
What is Idiopathic Hypersomnia Czym Jest Hipersomnia Idiopatyczna (IH)?
Portuguese
What is Idiopathic Hypersomnia? O que é Hipersonia Idiopática?
Idiopathic Hypersomnia - Facts About Treatment HIPERSONIA IDIOPÁTICA: FATOS SOBRE O TRATAMENTO
"The hardest thing I do every day" "A coisa mais difícil que eu faço todos os dias é acordar e me manter acordado”
What is Idiopathic Hypersomnia? O que é Hipersonia Idiopática?
Italian
What is Idiopathic Hypersomnia? Che cos'è l'Ipersonnia idiopatica
Sleep Drunkenness in Idiopathic Hypersomnia. L'ubriachezza del sonno nell'ipersonnia idiopatica
"The hardest thing I do everyday..." "La cosa più difficile che faccio ogni giorno è svegliarmi e rimanere sveglio"
What is Idiopathic Hypersomnia? Che cos'è l'Ipersonnia idiopatica
Click on the image to download a copy of our Top tips for people living with IH in Italian.
German
What is Idiopathic Hypersomnia? Was ist Idiopathische Hypersomnie
Sleep Drunkenness in Idiopathic Hypersomnia. Schlaftrunkenheit bei Idiopathischer Hypersomnie
"The hardest thing I do everyday..." Das schwierigste das ich jeden Tag mache, ist aufzuwachen und wach zu bleiben.
What is Idiopathic Hypersomnia? Was ist Idiopathische Hypersomnie
Click on the image to download a copy of our Top tips for people living with IH in German.
Finnish
Spanish
What is Idiopathic Hypersomnia? Qué es la Hipersomnia Idiopática?
Idiopathic Hypersomnia - Facts About Treatment HIPERSOMNIA IDIOPÁTICA: TRATAMIENTO
"The hardest thing I do everyday..." ""Lo más difícil que hago todos los días es despertarme y permanecer despierto"
What is Idiopathic Hypersomnia? Qué es la Hipersomnia Idiopática?
Mikä on Idiopaattinen Hypersomnia? What is Idiopathic Hypersomnia?
Idiopaattinen Hypersomnia - Faktoja Hoidosta. Idiopathic Hypersomnia - Facts about Treatment
Kaikkein vaikein asia minkä teen päivittäin on herääminen ja hereillä pysyminen. Hardest thing I do...
Mikä on Idiopaattinen Hypersomnia? What is Idiopathic Hypersomnia?
Indonesian
Hebrew
What is Idiopathic Hypersomnia? Apakah Hipersomnia Idiopatik itu ?
Sleep Drunkenness in Idiopathic Hypersomnia. Mabuk tidur pada Hipersomnia Idiopatik.
Did you know? Tahukah Anda? Penderita Hipersomnia Idiopatik biasanya memiliki kualitas tidur yang lebih baik daripada orang normal ; meskipun waktu tidur mereka lebih dari 10 jam, penderita akan bangun dengan perasaan seperti tidak tidur sama sekali.
What is Idiopathic Hypersomnia? Apakah Hipersomnia Idiopatik itu ?
What is Idiopathic Hypersomnia? מהי היפרסומניה אידיופתית
Sleep Drunkenness in Idiopathic Hypersomnia. שכרות שינה כתסמין במחלה היפרסומניה אידיופתית (IH)
Did you know? הידעת?
What is Idiopathic Hypersomnia? מהי היפרסומניה אידיופתית
Japanese
特発性過眠症とは何でしょうか? What is Idiopathic Hypersomnia? by Marina Kojima
特発性過眠症とは何でしょうか What is Idiopathic Hypersomnia?
特発性過眠症における睡眠酩酊 Sleep Drunkenness in Idiopathic Hypersomnia
特発性過眠症とは何でしょうか? What is Idiopathic Hypersomnia? by Marina Kojima
We would like to thank all those in the Idiopathic Hypersomnia community that helped translate our posters.
Dr Makoto Honda - Japanese
Dr Meillyssa Chandra Hutabarat - Indonesian
Tom Helge Rasmussen Uhlen - Norwegian
Dr Andréia Welter - Portuguese (Brazil)
José Silveira and Charo Rey - Spanish
Stav Rokach - Hebrew
Mateusz Zmudzinski - Polish
Emilie Vanhaesendonck - French and Dutch
Marina Kojima - Japanese
Alexandra Katharina Nothnagel - French
Anna Paczulla and Fiona Neumann - German
Valérie Hoch - French
Seline Stokkelaar - Dutch
Milo (HiisikoloART) - Finnish
Feri Ascencion from Narcolepsie België en Nederland - Dutch
Massimo Zenti, Fabio Cecchinato and Patrizia Gianotti Finckler - Italian
If there is a language that you can help us translate our posters into please email us at ihaweek@gmail.com