NEWS

ALL POSTS

How can I improve my quality of life?

Idiopathic Hypersomnia - How can I improve my quality of life?

Living with IH Global Support Groups

Are you looking for support or to meet (online) and chat with others living with IH? In 2020 we started LIVING WITH IDIOPATHIC...

IHAW - Ways to Participate

The Idiopathic Hypersomnia Awareness Week is 1-7 June! We encourage everyone to participate. Whether you have a lot of time or just a...

New date and collaboration for the IH Awareness Week

The Idiopathic Hypersomnia Awareness Week is moving to June 1-7 ! Note: This is a permanent move. The IHAW will be 1-7 June every year....

Living with IH - Share Your Experience Project

Why should you get involved? Raising awareness plays a crucial role in bringing attention to Idiopathic Hypersomnia (IH) and the...

Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity

We are excited to offer two people, one from the Idiopathic Hypersomnia community and one from the Narcolepsy community the opportunity...

RARE DISEASE DAY

Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases. Idiopathic Hypersomnia is a rare...

New medications offer hope in people with Narcolepsy and Idiopathic Hypersomnia

By Prof Ron Grunstein Orexin is a brain chemical that promotes wakefulness and is absent low levels in classic narcolepsy (has...

Life after Diagnosis - Live your best life.

'LIFE AFTER DIAGNOSIS - Insights into how to live your best life' is a 3 part presentation and discussion on ‘Improving overall health...

Catch up on the latest NEWS - November 2023