6-12th SEPTEMBER 2021
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The most important annual event for Idiopathic Hypersomnia is the Worldwide Idiopathic Hypersomnia Awareness Week® hosted by Hypersomnolence Australia. It is held annually in the first full week in September.

 

The Idiopathic Hypersomnia Awareness Week®’s social media is the central hub for the Idiopathic Hypersomnia Awareness Week event so make sure to "like" our Facebook page, and follow us on Twitter and Instagram

 

It is the mission of Worldwide Idiopathic Hypersomnia Awareness Week® to raise awareness and to help improve the level of education of Idiopathic Hypersomnia among the general public, people with Hypersomnia, and medical professionals. Idiopathic Hypersomnia Awareness Week® is hosted by Hypersomnolence Australia and actively encourages other people and organisations to join in this effort. After all, we have similar goals and we champion this cause
for the same reasons. We believe the key to success is a unified voice under one banner.


The IHAW is a truly worldwide event. We have worked with Ambassadors in the US, Canada, UK, Europe, Japan, and Australasia. 

 

If you are an individual, group, or organisation and would like to hold an appropriate awareness event you can register your event by completing this form. 


SCROLL DOWN FOR IMAGES TO SHARE ON SOCIAL MEDIA

Also check out our Living with IH page for more images

Your idea can make a difference

The Idiopathic Hypersomnia Awareness Week is a Worldwide collaborative event. If there are any individuals or organisations that would like to get involved or share their ideas please contact us at ihaweek@gmail.com

The Idiopathic Hypersomnia Awareness Week® is a registered Trademark in the United States and Australia and is recognised throughout the world as Idiopathic Hypersomnia's most significant annual awareness raising event. We are a non-profit organisation that does not receive funding and we do not charge membership. To allow us to continue to host this very important event we need your help! 

How does the IDIOPATHIC HYPERSOMNIA AWARENESS WEEK® Logo represent Idiopathic Hypersomnia?

The wavy line means more than you might think!


While there may not yet be any biomarkers or other clinical tests that can confirm Idiopathic Hypersomnia various research over the years shows that people with Idiopathic Hypersomnia, (particularly the complete form) often have more “slow wave sleep” (also referred to as “deep sleep”) than the average person.

Delta waves, like other brain waves, are recorded by EEG during
an overnight sleep study (polysomnogram). Delta waves are usually associated with the deep sleep experienced during stage 3 of NREM sleep, also known as slow-wave sleep (SWS). Below is an example of what delta waves look like during Slow Wave Sleep (stage 3).

Delta wave

I guess you can see now how we came up with the image in our logo but did you notice that the shape of the “delta waves”  in the IHAW logo depicts a horizontal face?

idiopathic hypersomnia
What can you do to help raise awareness_
Living with IH, tell your story

Sharing your experiences not only helps to raise awareness and educate others about what living with Idiopathic Hypersomnia is like it can also be empowering and can help light the way for those who are walking a similar path.

Go to our Living With IH page to read stories and perspectives shared by people living with Idiopathic Hypersomnia. 

The IDIOPATHIC HYPERSOMNIA AWARENESS WEEK® logo represents Idiopathic Hypersomnia in two ways. The delta waves represent the typical increased slow wave sleep experienced by people with Idiopathic Hypersomnia and the horizontal sleeping face is representative of the people with Idiopathic Hypersomnia.

Talinka Hill is the graphic designer responsible for the IDIOPATHIC HYPERSOMNIA AWARENESS WEEK® logo. We are extremely grateful to her for volunteering her time and talent to this project.

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Find us on Facebook, Twitter
and Instagram

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ADD A FACEBOOK FRAME TO YOUR PROFILE PIC
 Click on one of the two below. 
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WE ALSO HAVE A FACEBOOK COVER PHOTO
Check out the IHAW FACEBOOK PAGE

Click on a sign below to download a copy.
Take a photo of you holding it and share it online.

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Write in the space in the middle what living with Idiopathic Hypersomnia is like for you.
Take a photo of you holding it and share it online with #LivingWithIdiopathicHypersomnia #LivingwithIH

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The example below is Angel during IHAW2020 

Living with IH

When sharing your photos use #LivingWithIdiopathicHypersomnia, #LivingwithIH and/or #IHAW #IdiopathicHypersomniaAwareness 
You can also send us your photo and we will share it on our social media too! 
 

Living with IH tshirts

We have a range of TShirts designs. An example of them can be found in HA's Store.

We have processed custom orders for people all over the world so if you do not live in Australia and you would like to buy one of our TShirts please email us at:
ihaweek@gmail.com. Please DO NOT order via HA'S Store.

Please let us know what tshirt you would like and what country you live in. We will reply with your local size chart, a price and details for payment. Payment is made via a secure PayPal link. 

 

View and Download a copy of Hypersomnolence Australia's Idiopathic Hypersomnia Factsheet

You can also download a copy of Hypersomnolence Australia and Hypersomnia Foundation Idiopathic Hypersomnia Trifold Brochures.

Summary pages are available for each of the past Awareness Weeks: IHAW2020IHAW2019IHAW2018,  IHAW2017IHAW2016

For a summary of the IHAW from 2013 -2015 click here.

LOOKING FOR YOUR LOCAL COMMUNITY?
There are online Living with IH Community Groups in the USA, Canada, Australia/NZ and the EMEA (Europe/UK, Middle East and Africa)*. Meetings are held every month via Google Meet or other similar video conferencing.

The aim of the meetings is to provide people diagnosed with Idiopathic Hypersomnia (IH) with a community where they can offer and receive peer support and to assist with the isolation that many people with IH experience. Living with IH community groups are an informal monthly catch up where people diagnosed with IH can feel relaxed among others that truly do know what it is like living with IH.

See below for dates and times of meetings in your country/region.
*If you live outside of the USA, Canada or Australia/NZ feel free to join the EMEA group.

 
 

Living with IH USA meetings are every 2nd Sunday of the month. 3pm Pacific/6pm Eastern
If you live in the US and would like to attend please contact Megan at hypersomnolenceus@gmail.com 
Members of the LWIH USA community group are also welcome to join their Facebook group

 

Living with IH EMEA* (Europe/UK, Middle East and Africa) meetings are:
Every 2nd Tuesday at 18.30 GMT (19.30 CET)
Every 4th Saturday at 14.00 GMT (15.00 CET)
Please contact Matt Baker at hypersomnolenceuk@gmail.com if you would like to attend.
You are also welcome to join the Living with IH EMEA Facebook group.


Living with IH Canada meetings are held on the 4th Sunday of the month at 5pm Pacific/8pm Eastern. If you live in Canada and would like to attend a meeting please contact hypersomnolencecan@gmail.com
Members of the LWIH Canada support group are also welcome to join their Facebook group:
https://www.facebook.com/groups/785417069000226


Living with IH Australia/NZ meetings are every 3rd Monday of the month;

4pm - AWST    6pm* - AEST    8pm - NZ Time

*NSW & Vic please add an hour during daylight savings.

Living in Australia or NZ and would like to attend a meeting? Please complete this brief form

You can find more information on the support group page of our website. You can also email livingwithih@hypersomnolenceaustralia.org.au

Images to download and share - scroll down to find these posters in various other languages 

There are more images you can share on the other IHAW pages - links above, and also on our Living with Idiopathic Hypersomnia page

Click here to download a pdf copy of the poster below.
We are in the process of translating this poster into other languages see below
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You know you have Idiopathic Hypersomnia when...
You know you have Idiopathic Hypersomnia when...

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You know you have Idiopathic Hypersomnia when...
You know you have Idiopathic Hypersomnia when...

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You know you have Idiopathic Hypersomnia when...
You know you have Idiopathic Hypersomnia when...

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You know you have Idiopathic Hypersomnia when...
You know you have Idiopathic Hypersomnia when...

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Simone Living with IH
Simone Living with IH

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Shelly Living with IH
Shelly Living with IH

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Ellie Living with IH
Ellie Living with IH

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Simone Living with IH
Simone Living with IH

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Norwegian                                                          French                                                              Dutch 

What is Idiopathic Hypersomnia? Hva er idiopatisk hypersomni?

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Sleep Drunkenness in Idiopathic Hypersomnia. Søvn Drukkenskap i idiopatisk hypersomni.

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IH affects every part of a sufferers life

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What is Idiopathic Hypersomnia? Hva er idiopatisk hypersomni?

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What is Idiopathic Hypersomnia? Wat is Idiopahtische Hypersomnie?

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Sleep Drunkenness in Idiopathic Hypersomnia Slaap dronkenschap bij Idiopathische Hypersomnie

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"The hardest thing I do every day" "Het moeilijkste wat ik elke dag doe is wakker worden en wakker blijven."

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What is Idiopathic Hypersomnia? Wat is Idiopahtische Hypersomnie?

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Qu'est-ce que c’est l'hypersomnie idiopathique (HI)? What is Idiopathic Hypersomnia?

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Hypersomnie idiopathique: faits sur le traitement Idiopathic Hypersomnia - Facts about Treatment

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"La chose la plus difficile que je fais chaque jour est de me réveiller et puis de rester réveillé" Hardest thing I do everyday...

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Qu'est-ce que c’est l'hypersomnie idiopathique (HI)? What is Idiopathic Hypersomnia?

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IH poster NORWAY image.png

Click on the image to download a pdf. Right click to save the image.

IH poster French image.png

Click on the image to download a pdf. Right click to save the image.

IH poster Dutch.png

Click on the image to download a pdf. Right click to save the image.

Spanish                                                              Italian                                                               German

What is Idiopathic Hypersomnia? Che cos'è l'Ipersonnia idiopatica

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Sleep Drunkenness in Idiopathic Hypersomnia. L'ubriachezza del sonno nell'ipersonnia idiopatica

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"The hardest thing I do everyday..." "La cosa più difficile che faccio ogni giorno è svegliarmi e rimanere sveglio"

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What is Idiopathic Hypersomnia? Che cos'è l'Ipersonnia idiopatica

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What is Idiopathic Hypersomnia
What is Idiopathic Hypersomnia

What is Idiopathic Hypersomnia? Qué es la Hipersomnia Idiopática?

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Idiopathic Hypersomnia - Facts About Treatment HIPERSOMNIA IDIOPÁTICA: TRATAMIENTO

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The hardest thing I do
The hardest thing I do

"The hardest thing I do everyday..." ""Lo más difícil que hago todos los días es despertarme y permanecer despierto"

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What is Idiopathic Hypersomnia
What is Idiopathic Hypersomnia

What is Idiopathic Hypersomnia? Qué es la Hipersomnia Idiopática?

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What is Idiopathic Hypersomnia? Was ist Idiopathische Hypersomnie

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Sleep Drunkenness in Idiopathic Hypersomnia. Schlaftrunkenheit bei Idiopathischer Hypersomnie

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"The hardest thing I do everyday..." Das schwierigste das ich jeden Tag mache, ist aufzuwachen und wach zu bleiben.

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What is Idiopathic Hypersomnia? Was ist Idiopathische Hypersomnie

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Finnish                                                               Portuguese                                                         Indonesian                                                             

What is Idiopathic Hypersomnia? O que é Hipersonia Idiopática?

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Idiopathic Hypersomnia - Facts About Treatment HIPERSONIA IDIOPÁTICA: FATOS SOBRE O TRATAMENTO

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"The hardest thing I do every day" "A coisa mais difícil que eu faço todos os dias é acordar e me manter acordado”

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What is Idiopathic Hypersomnia? O que é Hipersonia Idiopática?

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What is Idiopathic Hypersomnia? Apakah Hipersomnia Idiopatik itu ?

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Sleep Drunkenness in Idiopathic Hypersomnia. Mabuk tidur pada Hipersomnia Idiopatik.

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Did you know? Tahukah Anda? Penderita Hipersomnia Idiopatik biasanya memiliki kualitas tidur yang lebih baik daripada orang normal ; meskipun waktu tidur mereka lebih dari 10 jam, penderita akan bangun dengan perasaan seperti tidak tidur sama sekali.

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What is Idiopathic Hypersomnia? Apakah Hipersomnia Idiopatik itu ?

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Mikä on Idiopaattinen Hypersomnia? What is Idiopathic Hypersomnia?

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Idiopaattinen Hypersomnia - Faktoja Hoidosta. Idiopathic Hypersomnia - Facts about Treatment

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Kaikkein vaikein asia minkä teen päivittäin on herääminen ja hereillä pysyminen. Hardest thing I do...

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Mikä on Idiopaattinen Hypersomnia? What is Idiopathic Hypersomnia?

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Japanese                                                                        Hebrew

特発性過眠症とは何でしょうか What is Idiopathic Hypersomnia?

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特発性過眠症 Idiopathic Hypersomnia - Facts about treatment.

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特発性過眠症における睡眠酩酊 Sleep Drunkenness in Idiopathic Hypersomnia

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特発性過眠症とは何でしょうか What is Idiopathic Hypersomnia?

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What is Idiopathic Hypersomnia? מהי היפרסומניה אידיופתית

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Sleep Drunkenness in Idiopathic Hypersomnia. שכרות שינה כתסמין במחלה היפרסומניה אידיופתית (IH)

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Did you know? הידעת?

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What is Idiopathic Hypersomnia? מהי היפרסומניה אידיופתית

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Polish                                                                     
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We would like to thank all those in the Idiopathic Hypersomnia community that helped translate our posters.
Dr Makoto Honda - Japanese                                 Dr Meillyssa Chandra Hutabarat - Indonesian       Tom Helge Rasmussen Uhlen - Norwegian 
Dr Andréia Welter - Portuguese (Brazil)                  José Silveira and Charo Rey - Spanish                 Stav Rokach - Hebrew        
Massimo Zenti and Fabio Cecchinato - Italian          Seline Stokkelaar - Dutch                                   Anna Paczulla - German

Alexandra Katharina Nothnagel - French                 Milo (HiisikoloART) - Finnish                              Emilie Vanhaesendonck - French and Dutch

Mateusz Zmudzinski - Polish

If there is a language that you can help us translate our posters into please email us at ihaweek@gmail.com