4-10th SEPTEMBER 2023
The most important annual event for Idiopathic Hypersomnia is the Worldwide Idiopathic Hypersomnia Awareness Week® hosted by Hypersomnolence Australia. It is held annually in the first full week in September.
The Idiopathic Hypersomnia Awareness Week®’s social media is the central hub for the Idiopathic Hypersomnia Awareness Week event so make sure to "like" our Facebook page, and follow us on Twitter and Instagram.
It is the mission of Worldwide Idiopathic Hypersomnia Awareness Week® to raise awareness and increase the understanding of Idiopathic Hypersomnia (IH). We also aim to help improve the level of education of IH among the general public, people living with IH, and medical professionals. Idiopathic Hypersomnia Awareness Week® was established in 2013 and is hosted by Hypersomnolence Australia who actively encourages other people and organisations to join in this effort. After all, we have similar goals and we champion this cause for the same reasons. We believe the key to success is a unified voice under one banner.
The IHAW is a truly worldwide event. We have worked with Ambassadors in the US, Canada, UK, Europe, Japan, and Australasia.
If you are a group, or organisation and would like to hold an appropriate awareness event you can register your event by completing this form.
Follow the IHAW Social Media
and Share to raise awareness:
The Idiopathic Hypersomnia Awareness Week® is a registered Trademark in the United States and Australia and is recognised throughout the world as a significant annual awareness raising event. We are a non-profit organisation that does not receive funding and we do not charge membership. To enable us to continue to host this very important event we need your help!
SCROLL DOWN FOR IMAGES TO SHARE ON SOCIAL MEDIA
Also check out our Living with IH page for more images
The Idiopathic Hypersomnia Awareness Week® is a Worldwide collaborative event. If there are any individuals or organisations that would like to get involved or share their ideas please contact us at ihaweek@gmail.com
Sharing your experiences not only helps to raise awareness and educate others it can also be empowering and can help light the way for those who are walking a similar path.
Go to our Living With IH page to read stories and perspectives shared by people living with Idiopathic Hypersomnia. Send your stories to ihaweek@gmail.com
Feel free to send us your story in your own language. We share stories and perspectives in all languages.
Change your Facebook cover image.
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Change your Facebook profile pic.
FACEBOOK PROFILE PICS AND COVER IMAGE CAN BE DOWNLOADED FROM OUR FACEBOOK PAGE.
Download a poster (or make your own) and take a photo of you holding it and share it online.
or share it without a photo
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We have a range of TShirt and Mug designs. An example of them can be found in HA's Store.
We have processed custom orders for people all over the world so if you do not live in Australia and you would like to buy one of our TShirts or Mugs please email us at: info@hypersomnolenceaustralia.org.au
Please DO NOT order via HA'S Store.
Let us know what t-shirt or mug design you would like, also the colour and size (size chart can be found in our store).
Please also let us know what country you are in. We will reply with a price in your currency* and details for payment. Payment is made via a secure PayPal link.
*Re: price, TShirts are generally $32US and Mugs are $30US
View and Download a copy of our Idiopathic Hypersomnia Factsheet
You can also download a copy of Hypersomnolence Australia and Hypersomnia Foundation Idiopathic Hypersomnia Trifold Brochures.
Summary pages are available for each of the past Awareness Weeks: IHAW2019, IHAW2018, IHAW2017, IHAW2016
For a summary of the IHAW from 2013 -2015 click here.
LOOKING FOR YOUR LOCAL COMMUNITY?
There are online Living with IH Community Groups in the USA, Canada, Australia/NZ and the EMEA (Europe/UK, Middle East and Africa)*. Meetings are held every month via Google Meet or other similar video conferencing.
The aim of the meetings is to provide people diagnosed with Idiopathic Hypersomnia (IH) with a community where they can offer and receive peer support and to assist with the isolation that many people with IH experience. Living with IH community groups are an informal monthly catch up where people diagnosed with IH can feel relaxed among others that truly do know what it is like living with IH.
See below for contact details of the LWIH community in your country/region.
*If you live outside of the USA, Canada or Australia/NZ feel free to join the EMEA group.
Living with IH USA
If you live in the US and would like to attend please contact Megan at hypersomnolenceus@gmail.com for more details.
Members of the LWIH USA community group are also welcome to join their Facebook group
Living with IH EMEA* (Europe/UK, Middle East and Africa)
Please contact Matt Baker at hypersomnolenceuk@gmail.com if you would like to attend and for more details.
You are also welcome to join the Living with IH EMEA Facebook group.
Living with IH Canada
Maryann, Rebecca and Kristin are the LWIH Canada LWIH group facilitators. If you live in Canada and would like to attend a meeting please contact hypersomnolencecan@gmail.com
Members of the LWIH Canada support group are also welcome to join their Facebook group:
Living with IH Australia/NZ
Living in Australia or NZ and would like to attend a meeting? Please complete this brief form
You can find more information on the support group page of our website. You can also email livingwithih@hypersomnolenceaustralia.org.au
Images to download and share - scroll down to find these posters in various other languages
There are more images you can share on the other IHAW pages - links above, and also on our Living with Idiopathic Hypersomnia page
Click here to download a pdf copy of the poster below.
We are in the process of translating this poster into other languages see below
Norwegian French Dutch
What is Idiopathic Hypersomnia? Hva er idiopatisk hypersomni?
Sleep Drunkenness in Idiopathic Hypersomnia. Søvn Drukkenskap i idiopatisk hypersomni.
IH affects every part of a sufferers life
What is Idiopathic Hypersomnia? Hva er idiopatisk hypersomni?
What is Idiopathic Hypersomnia? Wat is Idiopahtische Hypersomnie?
Sleep Drunkenness in Idiopathic Hypersomnia Slaap dronkenschap bij Idiopathische Hypersomnie
"The hardest thing I do every day" "Het moeilijkste wat ik elke dag doe is wakker worden en wakker blijven."
What is Idiopathic Hypersomnia? Wat is Idiopahtische Hypersomnie?
Qu'est-ce que c’est l'hypersomnie idiopathique (HI)? What is Idiopathic Hypersomnia?
Hypersomnie idiopathique: faits sur le traitement Idiopathic Hypersomnia - Facts about Treatment
"La chose la plus difficile que je fais chaque jour est de me réveiller et puis de rester réveillé" Hardest thing I do everyday...
Qu'est-ce que c’est l'hypersomnie idiopathique (HI)? What is Idiopathic Hypersomnia?
Click on the images to download a pdf.
Spanish Italian (see further below for more resources in Italian) German
What is Idiopathic Hypersomnia? Che cos'è l'Ipersonnia idiopatica
Sleep Drunkenness in Idiopathic Hypersomnia. L'ubriachezza del sonno nell'ipersonnia idiopatica
"The hardest thing I do everyday..." "La cosa più difficile che faccio ogni giorno è svegliarmi e rimanere sveglio"
What is Idiopathic Hypersomnia? Che cos'è l'Ipersonnia idiopatica
What is Idiopathic Hypersomnia? Qué es la Hipersomnia Idiopática?
Idiopathic Hypersomnia - Facts About Treatment HIPERSOMNIA IDIOPÁTICA: TRATAMIENTO
"The hardest thing I do everyday..." ""Lo más difícil que hago todos los días es despertarme y permanecer despierto"
What is Idiopathic Hypersomnia? Qué es la Hipersomnia Idiopática?
What is Idiopathic Hypersomnia? Was ist Idiopathische Hypersomnie
Sleep Drunkenness in Idiopathic Hypersomnia. Schlaftrunkenheit bei Idiopathischer Hypersomnie
"The hardest thing I do everyday..." Das schwierigste das ich jeden Tag mache, ist aufzuwachen und wach zu bleiben.
What is Idiopathic Hypersomnia? Was ist Idiopathische Hypersomnie
Finnish Portuguese Indonesian
What is Idiopathic Hypersomnia? O que é Hipersonia Idiopática?
Idiopathic Hypersomnia - Facts About Treatment HIPERSONIA IDIOPÁTICA: FATOS SOBRE O TRATAMENTO
"The hardest thing I do every day" "A coisa mais difícil que eu faço todos os dias é acordar e me manter acordado”
What is Idiopathic Hypersomnia? O que é Hipersonia Idiopática?
What is Idiopathic Hypersomnia? Apakah Hipersomnia Idiopatik itu ?
Sleep Drunkenness in Idiopathic Hypersomnia. Mabuk tidur pada Hipersomnia Idiopatik.
Did you know? Tahukah Anda? Penderita Hipersomnia Idiopatik biasanya memiliki kualitas tidur yang lebih baik daripada orang normal ; meskipun waktu tidur mereka lebih dari 10 jam, penderita akan bangun dengan perasaan seperti tidak tidur sama sekali.
What is Idiopathic Hypersomnia? Apakah Hipersomnia Idiopatik itu ?
Mikä on Idiopaattinen Hypersomnia? What is Idiopathic Hypersomnia?
Idiopaattinen Hypersomnia - Faktoja Hoidosta. Idiopathic Hypersomnia - Facts about Treatment
Kaikkein vaikein asia minkä teen päivittäin on herääminen ja hereillä pysyminen. Hardest thing I do...
Mikä on Idiopaattinen Hypersomnia? What is Idiopathic Hypersomnia?
Japanese Hebrew
特発性過眠症とは何でしょうか？ What is Idiopathic Hypersomnia? by Marina Kojima
特発性過眠症とは何でしょうか What is Idiopathic Hypersomnia?
特発性過眠症における睡眠酩酊 Sleep Drunkenness in Idiopathic Hypersomnia
特発性過眠症とは何でしょうか？ What is Idiopathic Hypersomnia? by Marina Kojima
What is Idiopathic Hypersomnia? מהי היפרסומניה אידיופתית
Sleep Drunkenness in Idiopathic Hypersomnia. שכרות שינה כתסמין במחלה היפרסומניה אידיופתית (IH)
Did you know? הידעת?
What is Idiopathic Hypersomnia? מהי היפרסומניה אידיופתית
Polish
What is Idiopathic Hypersomnia Czym Jest Hipersomnia Idiopatyczna (IH)?
Sleep Drunkenness in Idiopathic Hypersomnia Bezwładność Senna w Hipersomnii Idiopatycznej
IDIOPATHIC HYPERSOMNIA CAUSES MORE THAN JUST SLEEPINESS HIPERSOMNIA IDIOPATYCZNA TO NIE TYLKO NADMIERNA SENNOŚĆ
What is Idiopathic Hypersomnia Czym Jest Hipersomnia Idiopatyczna (IH)?
Click on the image to download a pdf.
Click on the image to download a copy of our 12 Top tips for people living with IH in Italian.