How can I improve my quality of life?
Idiopathic Hypersomnia - How can I improve my quality of life?
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NEWS
FEATURED POSTS
Michelle Chadwick
- Mar 19
- 2 min
Living with IH Global Support Groups
Are you looking for support or to meet (online) and chat with others living with IH? In 2020 we started LIVING WITH IDIOPATHIC...
Michelle Chadwick
- Mar 7
- 2 min
IHAW - Ways to Participate
The Idiopathic Hypersomnia Awareness Week is 1-7 June! We encourage everyone to participate. Whether you have a lot of time or just a...
Michelle Chadwick
- Mar 5
- 1 min
New date and collaboration for the IH Awareness Week
The Idiopathic Hypersomnia Awareness Week is moving to June 1-7 ! Note: This is a permanent move. The IHAW will be 1-7 June every year....
Michelle Chadwick
- Mar 4
- 2 min
Living with IH - Share Your Experience Project
Why should you get involved? Raising awareness plays a crucial role in bringing attention to Idiopathic Hypersomnia (IH) and the...
Michelle Chadwick
- Mar 1
- 3 min
Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity
We are excited to offer two people, one from the Idiopathic Hypersomnia community and one from the Narcolepsy community the opportunity...
Michelle Chadwick
- Feb 27
- 3 min
RARE DISEASE DAY
Rare Disease Day is held on the last day of February every year to raise awareness of rare diseases. Idiopathic Hypersomnia is a rare...
Michelle Chadwick
- Feb 22
- 3 min
New medications offer hope in people with Narcolepsy and Idiopathic Hypersomnia
By Prof Ron Grunstein Orexin is a brain chemical that promotes wakefulness and is absent low levels in classic narcolepsy (has...
Michelle Chadwick
- Jan 2
- 2 min
Life after Diagnosis - Live your best life.
'LIFE AFTER DIAGNOSIS - Insights into how to live your best life' is a 3 part presentation and discussion on ‘Improving overall health...
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New medications offer hope in people with Narcolepsy and Idiopathic Hypersomnia
By Prof Ron Grunstein Orexin is a brain chemical that promotes wakefulness and is absent low levels in classic narcolepsy (has...
Diagnosis to Aftercare
Practical advice for treating doctors of patients with Narcolepsy & Idiopathic Hypersomnia emphasising patient support and medication...
Narcolepsy & Idiopathic Hypersomnia Management Beyond Medication
On Wednesday 6th Sept at 7.30pm we will be holding a joint Living with IH and Living with Narcolepsy Catch up. There will be a special...
How to access Xyrem (Sodium Oxybate) in Australia
and why is Xyrem not TGA registered (approved) or PBS listed? What is Xyrem? The active substance in Xyrem is Sodium Oxybate, which is a...
Xywav: Does first to approval mean first-line treatment?
Xywav: Does first to approval mean first-line treatment? What does an expert say?
Meeting with ASA President and Clinical Chair Sleep Downunder Conference 2019
I was in Sydney on Wednesday 16th October for the Australasian Sleep Association’s Sleep Downunder conference and to attend meetings with...
Inquiry into Sleep Health Awareness in Australia
The House of Representatives Standing Committee on Health, Aged Care and Sport has commenced an Inquiry into Sleep Health Awareness in...
Modafinil/Armodafinil - Birth Control and Pregnancy
Did you know that Modafinil & Armodafinil can reduce the effectiveness of hormonal contraceptives?
Why is my Dex not working?
Learn how to get the best out of your medication.
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