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Insights from a 10-Year Australasian Idiopathic Hypersomnia Patient Data Registry Study
This is the first registry study of patients with IH in Australia and NZ. It demonstrates the value of patient registries to better…
Michelle Chadwick
4 days ago7 min read
Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity
We are excited to offer two people the opportunity to represent Hypersomnolence Australia at this year's Sleep DownUnder Conference.
Michelle Chadwick
Mar 173 min read
Call to action - Support for funding for a CDH Patient Registry
Attention Australians Living with Central Disorders of Hypersomnolence (CDH) ie: Narcolepsy, Idiopathic Hypersomnia, and Kleine-Levin Syndro
Michelle Chadwick
Feb 62 min read
Sleep DownUnder 2024 - Update
Last year, I noted that the recent attention on Idiopathic Hypersomnia and narcolepsy, both globally and in Australia, has been...
Michelle Chadwick
Nov 22, 20246 min read
How can I improve my quality of life?
Idiopathic Hypersomnia - How can I improve my quality of life?
Michelle Chadwick
May 21, 202417 min read
Living with IH Global Support Groups
Are you looking for support or to meet (online) and chat with others living with IH? In 2020 we started LIVING WITH IDIOPATHIC...
Michelle Chadwick
Mar 19, 20242 min read
IHAW - Ways to Participate
The Idiopathic Hypersomnia Awareness Week is 1-7 June! We encourage everyone to participate. Whether you have a lot of time or just a...
Michelle Chadwick
Mar 7, 20242 min read
New date and collaboration for the IH Awareness Week
The Idiopathic Hypersomnia Awareness Week is moving to June 1-7 ! Note: This is a permanent move. The IHAW will be 1-7 June every year....
Michelle Chadwick
Mar 5, 20241 min read
Living with IH - Share Your Experience Project
Why should you get involved? Raising awareness plays a crucial role in bringing attention to Idiopathic Hypersomnia (IH) and the...
Michelle Chadwick
Mar 4, 20242 min read
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Bedtime Reading - a summary of the Australian Parliamentary report into sleep health
The final report of the parliamentary inquiry into Australia’s ‘Sleep Health’ has been “hailed as a defining moment for patients,...
Where did the name Idiopathic Hypersomnia come from?
Every year on what would be his birthday, March 23rd, we honour a man who dedicated his life to medicine and science. Prof Bedrich Roth...
Together we can make a difference
The Worldwide Idiopathic Hypersomnia Awareness Week® (IHAW) is an annual initiative hosted by Hypersomnolence Australia. It is held every...
World Sleep Day 2019
With slogans like “Good sleep is a reachable dream”, “When Sleep is Sound, Health and Happiness Abound” and “Restful Sleep, Easy...
Celebrating 6 years raising awareness and advocating for Idiopathic Hypersomnia
Hypersomnolence Australia is celebrating 6 years as a Not for Profit Health Promotion Charity raising awareness and advocating for...
Dr Hugh Mestitz is retiring what now?!
There has been some concern about Dr Hugh Mestitz's imminent retirement. For those that don't know Dr Mestitz has treated people with...
House of Representatives standing committee report on sleep health.
On 23 November I wrote a post Inquiry into Sleep Health Awareness in Australia that announced that the House of Representatives Standing...
Rare Disease Day 2019
Rare Disease Day 2019 is an opportunity to be part of a global call on policy makers, healthcare professionals, and care services to better
A note from our Founder and Executive Director
I’ve had a busy year with sleep health advocacy this year. HA’s new website was launched in January and soon after I published...
Inquiry into Sleep Health Awareness in Australia
The House of Representatives Standing Committee on Health, Aged Care and Sport has commenced an Inquiry into Sleep Health Awareness in...
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