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Insights from a 10-Year Australasian Idiopathic Hypersomnia Patient Data Registry Study
This is the first registry study of patients with IH in Australia and NZ. It demonstrates the value of patient registries to better…
Michelle Chadwick
Sep 37 min read
Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity
We are excited to offer two people the opportunity to represent Hypersomnolence Australia at this year's Sleep DownUnder Conference.
Michelle Chadwick
Mar 173 min read
Call to action - Support for funding for a CDH Patient Registry
Attention Australians Living with Central Disorders of Hypersomnolence (CDH) ie: Narcolepsy, Idiopathic Hypersomnia, and Kleine-Levin Syndro
Michelle Chadwick
Feb 62 min read
Sleep DownUnder 2024 - Update
Last year, I noted that the recent attention on Idiopathic Hypersomnia and narcolepsy, both globally and in Australia, has been...
Michelle Chadwick
Nov 22, 20246 min read
How can I improve my quality of life?
Idiopathic Hypersomnia - How can I improve my quality of life?
Michelle Chadwick
May 21, 202417 min read
Living with IH Global Support Groups
Are you looking for support or to meet (online) and chat with others living with IH? In 2020 we started LIVING WITH IDIOPATHIC...
Michelle Chadwick
Mar 19, 20242 min read
IHAW - Ways to Participate
The Idiopathic Hypersomnia Awareness Week is 1-7 June! We encourage everyone to participate. Whether you have a lot of time or just a...
Michelle Chadwick
Mar 7, 20242 min read
New date and collaboration for the IH Awareness Week
The Idiopathic Hypersomnia Awareness Week is moving to June 1-7 ! Note: This is a permanent move. The IHAW will be 1-7 June every year....
Michelle Chadwick
Mar 5, 20241 min read
Living with IH - Share Your Experience Project
Why should you get involved? Raising awareness plays a crucial role in bringing attention to Idiopathic Hypersomnia (IH) and the...
Michelle Chadwick
Mar 4, 20242 min read
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Bulk Billing Sleep Studies Reduced
This is from a Facebook post I wrote yesterday (19 November 2018). For the urgent attention of people with sleep disorders in Australia....
Pressure building on SA Government to re-open sleep laboratory at Royal Adelaide Hospital
The pre-existing sleep laboratory in the ‘old’ Royal Adelaide Hospital (RAH) did not get moved over in the shift to the new RAH. Hospital...
Dr Rye HF Conference 2018
On the 6 October we shared a video on our social media of Dr. David Rye’s presentation at the 2018 Hypersomnia Foundation Conference. If...
Could your daily hit of caffeine be masking a sleep disorder?
Caffeine can be very effective for improving your concentration, alertness and energy. However, if you consume caffeine on a daily basis...
Thank you!
The #IHAW2018 was another huge success! We reached hundreds of thousands of people across various social media platforms, our website and...
Is there an Idiopathic Hypersomnia Awareness Week® T-Shirt?
Interested in Idiopathic Hypersomnia Awareness Week® merchandise? We have a Zazzle store! We created a Zazzle store because people ask us...
Complete Idiopathic Hypersomnia is an independent sleep disorder
The terms "with long sleep" and "without long sleep" never did adequately describe the two forms of Idiopathic Hypersomnia. However did...
Study suggests possible trait unique to Idiopathic Hypersomnia
Update in this research below. Idiopathic hypersomnia (IH) is a poorly understood disorder, characterised by excessive sleep and daytime...
Thoughts and stories by people living with Idiopathic Hypersomnia
Understanding how a chronic illness affects someone is difficult for anyone that doesn't experience it so for the 2018 Idiopathic...
Idiopathic Hypersomnia Awareness Week® Media Release
MEDIA RELEASE For immediate release 1 August 2018 6th annual international Idiopathic Hypersomnia Awareness Week® runs from 3th through...
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