What is Idiopathic Hypersomnia?

PATIENT PERSPECTIVES

Having a rare neurological sleep disorder like Idiopathic Hypersomnia usually means going through life never meeting another person you can relate to or who understands what life is like for you. This can be very isolating and lonely.

Our Patient Perspectives page is a place where you will find stories and other expressions by people living with Idiopathic Hypersomnia. We hope that their stories will help you on your journey.
Click on any of the images below to read these candidly shared and very helpful stories.

Hypersomnolence Australia is on a mission to improve the lives of people with Idiopathic Hypersomnia. But we need champions of change to join us.

There are various ways you can support us.

Our primary purpose is to support the medical community work towards a better understanding of Idiopathic Hypersomnia, effective treatment options, and identifying biomarkers that will lead to more appropriate diagnostic tools and ultimately a cure for Idiopathic Hypersomnia.

Idiopathic Hypersomnia (IH), sometimes referred to as Idiopathic Hypersomnolence, is a neurological sleep/wake disorder characterised by excessive sleep and daytime sleepiness despite extraordinary amounts of good quality sleep. It is a debilitating condition often profoundly affecting work, education, and relationships.

The most important annual event for Idiopathic Hypersomnia is the International Idiopathic Hypersomnia Awareness Week® hosted by Hypersomnolence Australia. It is held annually in the first full week in September.