Have you been recently diagnosed with Idiopathic Hypersomnia (also referred to as Idiopathic Hypersomnolence)? Or are you a long time sufferer or loved one/carer of someone with Idiopathic Hypersomnia looking for information and advice? You have come to the right place! Hypersomnolence Australia is committed to being a strong advocacy, raising awareness and educating others about Idiopathic Hypersomnia. Our goal is to not just change the process to diagnosis but also the level of care and services available to patients post diagnosis. All of our medical information including our Idiopathic Hypersomnia brochure has been reviewed by sleep health professionals.
Having a rare neurological sleep disorder like Idiopathic Hypersomnia usually means going through life never meeting another person you can relate to or who understands what life is like for you. This can be very isolating and lonely.
Our Patient Perspectives page is a place where you will find stories and other expressions by people living with Idiopathic Hypersomnia. We hope that their stories will help you on your journey.
Click on any of the images below to read these candidly shared and very helpful stories.
Click here for more Patient Perspectives from people living with Idiopathic Hypersomnia.
Hypersomnolence Australia is on a mission to improve the lives of people with Idiopathic Hypersomnia. But we need champions of change to join us.
There are various ways you can support us.
Our primary purpose is to support the medical community work towards a better understanding of Idiopathic Hypersomnia, effective treatment options, and identifying biomarkers that will lead to more appropriate diagnostic tools and ultimately a cure for Idiopathic Hypersomnia.
Idiopathic Hypersomnia (IH), sometimes referred to as Idiopathic Hypersomnolence, is a neurological sleep/wake disorder characterised by excessive sleep and daytime sleepiness despite extraordinary amounts of good quality sleep. It is a debilitating condition often profoundly affecting work, education, and relationships.
The most important annual event for Idiopathic Hypersomnia is the Worldwide Idiopathic Hypersomnia Awareness Week® hosted by Hypersomnolence Australia. It is held annually in the first full week in September.