RESEARCH STUDY - Physical Activity and Hypersomnolence
Can Physical Activity Help Manage Narcolepsy and Idiopathic Hypersomnia? Researchers at the University of Sydney are conducting a...
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ADVOCACY EDUCATION AWARENESS
for IDIOPATHIC HYPERSOMNIA
Est 2013, Celebrating 10 years as the world's first not for profit charity dedicated specifically to Idiopathic Hypersomnia
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Michelle Chadwick
- Mar 9
- 3 min
What is Cognitive Behaviour Therapy for Hypersomnia (CBT-H), and can it help you?
What is Cognitive Behaviour Therapy for Hypersomnia (CBT-H), and can it help you? Find out with Dr Sara Winter
Michelle Chadwick
- Mar 2
- 4 min
Celebrating 10 years as the world's first not for profit charity for Idiopathic Hypersomnia
Hypersomnolence Australia is celebrating 10 years as a Not for Profit Health Promotion Charity raising awareness, providing support, and...
Michelle Chadwick
- Feb 21
- 2 min
Fundraising Made Easy with Ritchies IGA & Drakes Supermarkets
We have nominated Ritchies IGA and Drakes Supermarkets as our Fundraising Partners. Help Hypersomnolence Australia help you! Recruit...
Michelle Chadwick
- Feb 13
- 3 min
Nutrition and Diet with Jessica Turton
Our first special guest speaker was Jessica Turton. Jessica is a qualified practicing dietitian and nutritionist, Phd Student, and founder o
Michelle Chadwick
- Sep 5, 2022
- 3 min
Top 12 Tips for Living with Idiopathic Hypersomnia
Top 12 Tips for Living with Idiopathic Hypersomnia. Practical advice for Patients, Carers, and treating Doctors.
Michelle Chadwick
- Sep 2, 2022
- 7 min
Idiopathic Hypersomnia - Advocacy and Awareness
During the Idiopathic Hypersomnia & Narcolepsy Education Day in April this year, we discussed what was needed for Idiopathic Hypersomnia...
Michelle Chadwick
- Aug 22, 2022
- 2 min
Idiopathic Hypersomnia Awareness Week 2022
The 10th annual Worldwide Idiopathic Hypersomnia Awareness Week (IHAW) is only two weeks away! Find out how you can get involved.
Michelle Chadwick
- May 10, 2022
- 2 min
Idiopathic Hypersomnia & Narcolepsy Education Day VIDEOS
Idiopathic Hypersomnia & Narcolepsy Education Day WATCH the videos!
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Rare Disease Day 2019
Rare Disease Day 2019 is an opportunity to be part of a global call on policy makers, healthcare professionals, and care services to better
Dr Rye HF Conference 2018
On the 6 October we shared a video on our social media of Dr. David Rye’s presentation at the 2018 Hypersomnia Foundation Conference. If you missed it you can view it here Dr Rye spoke of the progress on many fronts including awareness, diagnostics and causes. He highlighted the increased attention at international sleep conferences including the World Sleep Congress 2017 where there was a very well attended symposium on Idiopathic Hypersomnia. Prof Karel Sonka used my Idiopa
Thank you!
The #IHAW2018 was another huge success! We reached hundreds of thousands of people across various social media platforms, our website and through print media and also radio. Thank you to everyone that interacted with (ie: shared, liked and commented) our posts. And a special thank you to those of you that went above and beyond to show your support. It doesn’t go unnoticed so I apologise if I don’t mention you here.
Thank you to this year’s ambassadors and to our five genero
Study suggests possible trait unique to Idiopathic Hypersomnia
Update in this research below. Idiopathic hypersomnia (IH) is a poorly understood disorder, characterised by excessive sleep and daytime sleepiness. It has a severe impact on quality of life.
An article published in the Sleep Research Society’s journal, SLEEP reports the first neuroimaging study of Idiopathic Hypersomnia, showing altered brain perfusion in regions modulating sleep-wake states. “These preliminary findings suggest that idiopathic hypersomnia is characterized b
Thoughts and stories by people living with Idiopathic Hypersomnia
Understanding how a chronic illness affects someone is difficult for anyone that doesn't experience it so for the 2018 Idiopathic Hypersomnia Awareness Week® we wanted to do our best to show people what living with IH is like through the thoughts and stories of people living with Idiopathic Hypersomnia.
Idiopathic Hypersomnia tired is not normal people tired. "To start with when normal people are tired it’s generally because they are sleep deprived or their sleep quality is
Idiopathic Hypersomnia Awareness Week® Media Release
MEDIA RELEASE For immediate release 1 August 2018 6th annual international Idiopathic Hypersomnia Awareness Week® runs from 3th through to 9th September. Idiopathic Hypersomnia (IH), sometimes referred to as Idiopathic Hypersomnolence, is a neurological sleep/wake disorder characterised by excessive sleep and daytime sleepiness. Most people can feel tired, fatigued and at times, excessively sleepy, particularly when they do not get enough sleep. However what sets people with
Idiopathic Hypersomnia Awareness Week® 2018 Ambassadors
We are pleased to introduce the 2018 Idiopathic Hypersomnia Awareness Week® Ambassadors. We are fortunate to again have representatives from a few different countries. They bring to the role a range of perspectives and experience. Let's meet them! Susanna Barber
Northumberland, UK Susanna has a love of people and animals. She has spent many years working with horses in roles that include grooming, a jockey, event rider as well as a yard manager. Sadly, due to IH she has had t
Idiopathic Hypersomnia Information Brochure
THIS POST IS UPDATED WHENEVER OUR FACTSHEET/BROCHURE IS UPDATED ie: the copy bottom is our most current factsheet and trifold brochure. Have you or someone you know been diagnosed with Idiopathic Hypersomnia (sometimes referred to as Idiopathic Hypersomnolence)? Are you finding it difficult to understand or having trouble explaining it to others? Or are you a medical professional looking for a good quality resource for your patients?
Hypersomnolence Australia (HA) has produc
Idiopathic Hypersomnia Patient Register
Hypersomnolence Australia holds the only patient registry of people diagnosed with Idiopathic Hypersomnia in Australia. It is used for the purpose of aiding research and and to assist us to identify key areas of concern that need addressing. It also gives you the opportunity to tell us what your biggest concerns are, the hurdles you face or issues you think need attention.The survey is only 28 questions and should take no more than about 15 minutes to do. Note: as relevant or
Hypersomnolence Australia turns 5! What's new?
Every year we say we have come a long way and I'm proud to say this year has been no different. I never expected HA to make the impact it has in such a short time. Some things have taken a little longer to achieve than others but we have come to appreciate that all organisations need time to grow and that with time comes experience and knowledge.
So What's New?
We are so excited to have a brochure for Idiopathic Hypersomnia (IH). Our brochure was written by me however it w
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