RESEARCH STUDY - Physical Activity and Hypersomnolence
Can Physical Activity Help Manage Narcolepsy and Idiopathic Hypersomnia? Researchers at the University of Sydney are conducting a...
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ADVOCACY EDUCATION AWARENESS
for IDIOPATHIC HYPERSOMNIA
Est 2013, Celebrating 10 years as the world's first not for profit charity dedicated specifically to Idiopathic Hypersomnia
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Michelle Chadwick
- Mar 9
- 3 min
What is Cognitive Behaviour Therapy for Hypersomnia (CBT-H), and can it help you?
What is Cognitive Behaviour Therapy for Hypersomnia (CBT-H), and can it help you? Find out with Dr Sara Winter
Michelle Chadwick
- Mar 2
- 4 min
Celebrating 10 years as the world's first not for profit charity for Idiopathic Hypersomnia
Hypersomnolence Australia is celebrating 10 years as a Not for Profit Health Promotion Charity raising awareness, providing support, and...
Michelle Chadwick
- Feb 21
- 2 min
Fundraising Made Easy with Ritchies IGA & Drakes Supermarkets
We have nominated Ritchies IGA and Drakes Supermarkets as our Fundraising Partners. Help Hypersomnolence Australia help you! Recruit...
Michelle Chadwick
- Feb 13
- 3 min
Nutrition and Diet with Jessica Turton
Our first special guest speaker was Jessica Turton. Jessica is a qualified practicing dietitian and nutritionist, Phd Student, and founder o
Michelle Chadwick
- Sep 5, 2022
- 3 min
Top 12 Tips for Living with Idiopathic Hypersomnia
Top 12 Tips for Living with Idiopathic Hypersomnia. Practical advice for Patients, Carers, and treating Doctors.
Michelle Chadwick
- Sep 2, 2022
- 7 min
Idiopathic Hypersomnia - Advocacy and Awareness
During the Idiopathic Hypersomnia & Narcolepsy Education Day in April this year, we discussed what was needed for Idiopathic Hypersomnia...
Michelle Chadwick
- Aug 22, 2022
- 2 min
Idiopathic Hypersomnia Awareness Week 2022
The 10th annual Worldwide Idiopathic Hypersomnia Awareness Week (IHAW) is only two weeks away! Find out how you can get involved.
Michelle Chadwick
- May 10, 2022
- 2 min
Idiopathic Hypersomnia & Narcolepsy Education Day VIDEOS
Idiopathic Hypersomnia & Narcolepsy Education Day WATCH the videos!
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Bedřich Roth, His Life’s Work and the 35th anniversary of the book “Narcolepsy and Hypersomnia”
*First published September 2015 I would like to take this opportunity during Idiopathic Hypersomnia Awareness Week 2015 to acknowledge the 35th anniversary of the classic text Narcolepsy and Hypersomnia (1980 S. Karger; NY, NY) and to pay tribute to the extraordinary contribution to neurological sleep research by renowned neurologist Bedřich Roth. The book Narcolepsy and Hypersomnia was published in English in 1980 and is an accumulation of Roth’s work spanning more than 30 y
Idiopathic Hypersomnia Awareness Week on ABC Radio
The founder of Hypersomnolence Australia and Idiopathic Hypersomnia Awareness Week, Michelle Chadwick was interviewed live on ABC Radio on 5th September during the 2017 Idiopathic Hypersomnia Awareness Week. .
Know someone that doesn't understand what Idiopathic Hypersomnia is and what it is like to live with it? Get them to listen to this radio interview >> click here #IdiopathicHypersomnia #RadioInterview #IHAW2017 #MichelleChadwick #IdiopathicHypersomniaAwareness #Idio
Thank you for caring for someone with Idiopathic Hypersomnia
There is no cure for Idiopathic Hypersomnia and the medications that are used only partly help to manage symptoms. For many people, medications are often not effective long term and there are very few alternatives. There are no medications that help with the extreme difficulty waking up or the sleep drunkenness and there are no medications to help with the cognitive dysfunction either. Many people with Idiopathic Hypersomnia have no reprieve from their symptoms. There are no
Correct Terminology Matters
The terms 'hypersomnia of unknown origin' and 'excessive daytime sleepiness' are not synonymous with idiopathic hypersomnia (they do not mean the same thing). Idiopathic Hypersomnia is an unfortunate name. This is because the word “idiopathic” means ‘unknown cause’ and this can lead people to assume it is merely a symptom – the symptom of being ‘sleepy’ and doctors don’t know why. This is not correct. Idiopathic hypersomnia was identified and described as a separate disease e
Research is important for rare diseases
The theme for this year’s Idiopathic Hypersomnia Awareness Week is “Research”. We share the theme of “Research” with this year’s Rare Disease Day. “Imagine going to see your doctor only to be told that they don’t know what is happening to your body, that they don’t know what your disease is. Imagine that they can diagnose your disease but tell you that there is no cure or treatment available. Or that the treatment available is not fully effective but just the best possible op
Do People With Idiopathic Hypersomnia Really Sleep Longer Than Normal?
One of the biggest frustrations for someone with Idiopathic Hypersomnia is that some people don't believe they actually sleep excessively, or worse that Idiopathic Hypersomnia isn't "real" ... So, do people with Idiopathic Hypersomnia really sleep longer than normal? The answer is yes. The word “hypersomnia” actually means excessive sleep, not “sleepy”, not “tired” and not even “excessive daytime sleepiness”, but actual sleep that is excessive in depth and excessive in durati
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