The #IHAW2018 was another huge success! We reached hundreds of thousands of people across various social media platforms, our website and through print media and also radio. Thank you to everyone that interacted with (ie: shared, liked and commented) our posts. And a special thank you to those of you that went above and beyond to show your support. It doesn’t go unnoticed so I apologise if I don’t mention you here.
Thank you to this year’s ambassadors and to our five genero
Interested in Idiopathic Hypersomnia Awareness Week® merchandise? We have a Zazzle store! We created a Zazzle store because people ask us "Is there IH Awareness Week merchandise to buy?". We keep the prices as low as we can so that people have IHAW items to buy. We do not make any profit (we have made none to date*). If we did make any money from our Zazzle store it will go directly to keeping the Worldwide Idiopathic Hypersomnia Awareness Week® going. We can create just abo
Update in this research below. Idiopathic hypersomnia (IH) is a poorly understood disorder, characterised by excessive sleep and daytime sleepiness. It has a severe impact on quality of life.
An article published in the Sleep Research Society’s journal, SLEEP reports the first neuroimaging study of Idiopathic Hypersomnia, showing altered brain perfusion in regions modulating sleep-wake states. “These preliminary findings suggest that idiopathic hypersomnia is characterized b
Understanding how a chronic illness affects someone is difficult for anyone that doesn't experience it so for the 2018 Idiopathic Hypersomnia Awareness Week® we wanted to do our best to show people what living with IH is like through the thoughts and stories of people living with Idiopathic Hypersomnia.
Idiopathic Hypersomnia tired is not normal people tired. "To start with when normal people are tired it’s generally because they are sleep deprived or their sleep quality is
MEDIA RELEASE For immediate release 1 August 2018 6th annual international Idiopathic Hypersomnia Awareness Week® runs from 3th through to 9th September. Idiopathic Hypersomnia (IH), sometimes referred to as Idiopathic Hypersomnolence, is a neurological sleep/wake disorder characterised by excessive sleep and daytime sleepiness. Most people can feel tired, fatigued and at times, excessively sleepy, particularly when they do not get enough sleep. However what sets people with
We are pleased to introduce the 2018 Idiopathic Hypersomnia Awareness Week® Ambassadors. We are fortunate to again have representatives from a few different countries. They bring to the role a range of perspectives and experience. Let's meet them! Susanna Barber
Northumberland, UK Susanna has a love of people and animals. She has spent many years working with horses in roles that include grooming, a jockey, event rider as well as a yard manager. Sadly, due to IH she has had t
I bet every single person with Idiopathic Hypersomnia can relate to this “But what you don’t know is that I pass on many experiences and opportunities because I am sick. Some things are too difficult, some things are not worth it, and some things could be detrimental to me. What you don’t know is that having a chronic illness is like losing every part of what made you who you are. Sometimes I feel like I’m reaching out for a tiny thread that is tied to life — not life itself
This is a comprehensive review of how we have gone from the identification of Idiopathic Hypersomnia to where we are now. Drawn from 56 references, including over 40 peer-reviewed papers and book chapters on Idiopathic Hypersomnia and Narcolepsy that span more than 6 decades as well as numerous personal conversations with the world's leading Idiopathic Hypersomnia researchers. This review is also relevant if you are treating patients with Narcolepsy Type 2 (without cataplexy)
Dr. David Rye’s 2013 session at the Narcolepsy Network conference entitled: What’s in a Name? Understanding the Origins of the Terminologies for the Family of Hypersomnias. This video is a fascinating examination of semantics and the signs and symptoms of hypersomnia.
“Narcolepsy, real narcolepsy, narcolepsy with cataplexy is under the Hypersomnias, but narcolepts don’t sleep anymore over 24hrs than anyone else does, that’s been shown in numerous studies…. Hypersomnia means