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Idiopathic Hypersomnia & Narcolepsy
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FEATURED POSTS
How to access Sodium Oxybate in Australia
and why is Sodium Oxybate is not TGA registered (approved) or PBS listed? Update – November 2025 The supply arrangements for Xyrem® (sodium oxybate) in Australia have recently changed. UCB Pharma, the company that has been importing and supplying Xyrem® under the Therapeutic Goods Administration (TGA) Special Access Scheme (SAS), has confirmed that they can no longer continue supply due to global distribution changes made by the manufacturer, Jazz Pharmaceuticals. To prevent
Michelle Chadwick
Nov 87 min read
From Diagnosis to Aftercare
Guidance for Health Professionals supporting individuals with Narcolepsy and Idiopathic Hypersomnia The relief individuals may experience when diagnosed with narcolepsy and idiopathic hypersomnia, the confirmation that they have a genuine disorder, is often short-lived. This document aims to guide health professionals in helping individuals prepare for this adjustment and support them in managing their expectations. Click here to download a copy of this information. Discus
Michelle Chadwick
Nov 34 min read
Top Tips for Living with Hypersomnia
Top Tips for Living with Hypersomnia. Practical advice for Patients, Carers, and treating Doctors.
Michelle Chadwick
Nov 35 min read
Update on Xyrem® (Sodium Oxybate) Supply in Australia
Many people living with Narcolepsy or Idiopathic Hypersomnia (IH) have been asking what’s happening with Xyrem® (sodium oxybate) supply in Australia. I have met with representatives from UCB Pharma and also communicated directly with MedSurge, the company now supporting supply. Here’s what we can confirm - and why you can still access treatment. What’s happening UCB Pharma, who have been importing and supplying Xyrem® in Australia under the TGA’s Special Access Scheme (SAS)
Michelle Chadwick
Oct 312 min read
Sleep DownUnder 2025 Highlights
From the perspective of Central Disorders of Hypersomnolence - Idiopathic Hypersomnia & Narcolepsy
Michelle Chadwick
Oct 2521 min read
Insights from a 10-Year Australasian Idiopathic Hypersomnia Patient Data Registry Study
This is the first registry study of patients with IH in Australia and NZ. It demonstrates the value of patient registries to better…
Michelle Chadwick
Sep 37 min read
Sleep DownUnder - Hypersomnolence Australia Delegate Opportunity
We are excited to offer two people the opportunity to represent Hypersomnolence Australia at this year's Sleep DownUnder Conference.
Michelle Chadwick
Mar 173 min read
Sleep DownUnder 2024 - Update
Last year, I noted that the recent attention on Idiopathic Hypersomnia and narcolepsy, both globally and in Australia, has been...
Michelle Chadwick
Nov 22, 20246 min read
How can I improve my quality of life?
Idiopathic Hypersomnia - How can I improve my quality of life?
Michelle Chadwick
May 21, 202417 min read
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Idiopathic Hypersomnia Meet Up's
We have meet up's in Brisbane and Melbourne coming up. Anyone with Idiopathic Hypersomnia and their family and friends are welcome....
Together we can make a difference
The Worldwide Idiopathic Hypersomnia Awareness Week® (IHAW) is an annual initiative hosted by Hypersomnolence Australia. It is held every...
World Sleep Day 2019
With slogans like “Good sleep is a reachable dream”, “When Sleep is Sound, Health and Happiness Abound” and “Restful Sleep, Easy...
Celebrating 6 years raising awareness and advocating for Idiopathic Hypersomnia
Hypersomnolence Australia is celebrating 6 years as a Not for Profit Health Promotion Charity raising awareness and advocating for...
Dr Hugh Mestitz is retiring what now?!
There has been some concern about Dr Hugh Mestitz's imminent retirement. For those that don't know Dr Mestitz has treated people with...
Rare Disease Day 2019
Rare Disease Day 2019 is an opportunity to be part of a global call on policy makers, healthcare professionals, and care services to better
Bulk Billing Sleep Studies Reduced
This is from a Facebook post I wrote yesterday (19 November 2018). For the urgent attention of people with sleep disorders in Australia....
Pressure building on SA Government to re-open sleep laboratory at Royal Adelaide Hospital
The pre-existing sleep laboratory in the ‘old’ Royal Adelaide Hospital (RAH) did not get moved over in the shift to the new RAH. Hospital...
Could your daily hit of caffeine be masking a sleep disorder?
Caffeine can be very effective for improving your concentration, alertness and energy. However, if you consume caffeine on a daily basis...
Thank you!
The #IHAW2018 was another huge success! We reached hundreds of thousands of people across various social media platforms, our website and...
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