A new study published in SLEEP (2026) provides strong evidence that the body’s normal “sleep pressure” system doesn’t function properly in people living with Idiopathic Hypersomnia (IH). This might sound technical, but it helps explain something many people with IH experience every day. What is “sleep pressure”? Sleep pressure is the brain’s built-in drive for sleep. In a typical system, it: builds up while you’re awake reduces during sleep resets overnight so you wake up fee

Idiopathic Hypersomnia Day (IH Day) is a global awareness day focused on increasing understanding of idiopathic hypersomnia (IH). IH Day is an opportunity to raise awareness, share lived experience, challenge misconceptions, and build greater understanding of what it is really like to live with IH. Increased awareness is a critical step toward improving diagnosis, access to treatment, and quality of life. Hypersomnolence Australia is proud to continue this work as part of a g

and why is Sodium Oxybate is not TGA registered (approved) or PBS listed? Update – November 2025 The supply arrangements for Xyrem® (sodium oxybate) in Australia have recently changed. UCB Pharma, the company that has been importing and supplying Xyrem® under the Therapeutic Goods Administration (TGA) Special Access Scheme (SAS), has confirmed that they can no longer continue supply due to global distribution changes made by the manufacturer, Jazz Pharmaceuticals. To prevent

Guidance for Health Professionals supporting individuals with Narcolepsy and Idiopathic Hypersomnia The relief individuals may experience when diagnosed with narcolepsy and idiopathic hypersomnia, the confirmation that they have a genuine disorder, is often short-lived. This document aims to guide health professionals in helping individuals prepare for this adjustment and support them in managing their expectations. Click here to download a copy of this information. Discus

Top Tips for Living with Hypersomnia. Practical advice for Patients, Carers, and treating Doctors.

Many people living with Narcolepsy or Idiopathic Hypersomnia (IH) have been asking what’s happening with Xyrem® (sodium oxybate) supply in Australia. I have met with representatives from UCB Pharma and also communicated directly with MedSurge, the company now supporting supply. Here’s what we can confirm - and why you can still access treatment. What’s happening UCB Pharma, who have been importing and supplying Xyrem® in Australia under the TGA’s Special Access Scheme (SAS)

From the perspective of Central Disorders of Hypersomnolence - Idiopathic Hypersomnia & Narcolepsy

This is the first registry study of patients with IH in Australia and NZ. It demonstrates the value of patient registries to better…

We are excited to offer two people the opportunity to represent Hypersomnolence Australia at this year's Sleep DownUnder Conference.