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Where did the name Idiopathic Hypersomnia come from?

Every year on what would be his birthday, March 23rd, we honour a man who dedicated his life to medicine and science. Prof Bedrich Roth (1919-1989) was a renowned neurologist responsible for identifying and naming Idiopathic Hypersomnia. His seminal works over many years on narcolepsy and hypersomnia have left an indelible mark on the history of sleep medicine. Roth is credited as being a true pioneer in the area of narcolepsy and hypersomnia due to the valuable epidemiologic

Dr Hugh Mestitz is retiring what now?!

There has been some concern about Dr Hugh Mestitz's imminent retirement. For those that don't know Dr Mestitz has treated people with narcolepsy and idiopathic hypersomnia at Hobart Royal Hospital for many years and the fear is that with his retirement people will need to travel to Melbourne for their ongoing treatment and care. I contacted Dr Mestitz today and I can assure you that he is not going to leave any of his patients in the lurch. He has assured me that no one wi

House of Representatives standing committee report on sleep health.

On 23 November I wrote a post Inquiry into Sleep Health Awareness in Australia that announced that the House of Representatives Standing Committee on Health, Aged Care and Sport had commenced an Inquiry into Sleep Health Awareness in Australia. The Committee invited submissions from the public to its inquiry. As the Executive Director of Hypersomnolence Australia and Director of Sleep Disorders Australia, I was invited to the public hearing that was held at Parliament House,

Suddenly Sleepy Saturday 2018

Suddenly Sleepy Saturday, also known as Narcolepsy Awareness Day is March 10, 2018. It coincides with the beginning of the US Sleep Awareness Week March 11-17. What is narcolepsy? Narcolepsy is a chronic neurological disorder that affects the brain’s ability to control sleep-wake cycles. Narcoleptics are unique in that they enter REM sleep (the period of sleep when dreams are most likely to occur) very quickly after falling asleep, even when sleeping during the day. People

Idiopathic Hypersomnia - A Comprehensive Review

This is a comprehensive review of how we have gone from the identification of Idiopathic Hypersomnia to where we are now. Drawn from 56 references, including over 40 peer-reviewed papers and book chapters on Idiopathic Hypersomnia and Narcolepsy that span more than 6 decades as well as numerous personal conversations with the world's leading Idiopathic Hypersomnia researchers. This review is also relevant if you are treating patients with Narcolepsy Type 2 (without cataplexy)

Sleep Health in Patients with Sleep Disorders Survey Feedback

We conducted an online survey, "Sleep Health in Patients with Sleep Disorders". The aim of the survey was to get a snapshot of the sleep health of people diagnosed with sleep disorders, including information pertaining to their sleep habits, how much people with sleep disorders know about sleep health, what they have been advised by their doctors, and what they think they should have been told. Thank you to all those that participated. The last question in our survey was "W

What’s in a Name? Understanding the Origins of the Terminologies for the Family of Hypersomnias

Dr. David Rye’s 2013 session at the Narcolepsy Network conference entitled: What’s in a Name? Understanding the Origins of the Terminologies for the Family of Hypersomnias. This video is a fascinating examination of semantics and the signs and symptoms of hypersomnia. “Narcolepsy, real narcolepsy, narcolepsy with cataplexy is under the Hypersomnias, but narcolepts don’t sleep anymore over 24hrs than anyone else does, that’s been shown in numerous studies…. Hypersomnia means

Bedřich Roth, His Life’s Work and the 35th anniversary of the book “Narcolepsy and Hypersomnia”

*First published September 2015 I would like to take this opportunity during Idiopathic Hypersomnia Awareness Week 2015 to acknowledge the 35th anniversary of the classic text Narcolepsy and Hypersomnia (1980 S. Karger; NY, NY) and to pay tribute to the extraordinary contribution to neurological sleep research by renowned neurologist Bedřich Roth. The book Narcolepsy and Hypersomnia was published in English in 1980 and is an accumulation of Roth’s work spanning more than 30 y

Interview with Prof. Michel Billiard for the 8th European Narcolepsy Day 2017

Over the past four decades, Prof. Michel Billiard has published numerous articles on narcolepsy with cataplexy and other hypersomnias of central origin, particularly Kleine-Levin Syndrome and Idiopathic hypersomnia. I spoke with Prof Billiard for the tribute “Bedřich Roth, His Life’s Work and the 35th anniversary of the book “Narcolepsy and Hypersomnia” that I wrote for the Idiopathic Hypersomnia Awareness Week 2015. The theme for the 2017 awareness week is research so I’m l

ADVOCACY EDUCATION AWARENESS
for IDIOPATHIC HYPERSOMNIA

Est 2013, Celebrating 10 years as the world's first not for profit charity dedicated specifically to Idiopathic Hypersomnia

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