Many people living with Narcolepsy or Idiopathic Hypersomnia (IH) have been asking what’s happening with Xyrem® (sodium oxybate) supply in Australia. I have met with representatives from UCB Pharma and also communicated directly with MedSurge, the company now supporting supply. Here’s what we can confirm - and why you can still access treatment. What’s happening UCB Pharma, who have been importing and supplying Xyrem® in Australia under the TGA’s Special Access Scheme (SAS)

From the perspective of Central Disorders of Hypersomnolence - Idiopathic Hypersomnia & Narcolepsy

This is the first registry study of patients with IH in Australia and NZ. It demonstrates the value of patient registries to better…

We are excited to offer two people the opportunity to represent Hypersomnolence Australia at this year's Sleep DownUnder Conference.

Attention Australians Living with Central Disorders of Hypersomnolence (CDH) ie: Narcolepsy, Idiopathic Hypersomnia, and Kleine-Levin Syndro

Last year, I noted that the recent attention on Idiopathic Hypersomnia and narcolepsy, both globally and in Australia, has been...

Idiopathic Hypersomnia - How can I improve my quality of life?

Are you looking for support or to meet (online) and chat with others living with IH? In 2020 we started LIVING WITH IDIOPATHIC...

The Idiopathic Hypersomnia Awareness Week is 1-7 June! We encourage everyone to participate. Whether you have a lot of time or just a...