With slogans like “Good sleep is a reachable dream”, “When Sleep is Sound, Health and Happiness Abound” and “Restful Sleep, Easy Breathing, Healthy Body” it is clear that the focus of World Sleep Day has always been on the importance of getting a good night’s sleep. And quite rightly so, lack of sleep or poor quality sleep is known to have a significant negative impact on our health. However research also shows that prolonged time spent in bed and excessive sleep is equally d
The #IHAW2018 was another huge success! We reached hundreds of thousands of people across various social media platforms, our website and through print media and also radio. Thank you to everyone that interacted with (ie: shared, liked and commented) our posts. And a special thank you to those of you that went above and beyond to show your support. It doesn’t go unnoticed so I apologise if I don’t mention you here.
Thank you to this year’s ambassadors and to our five genero
Interested in Idiopathic Hypersomnia Awareness Week® merchandise? We have a Zazzle store! We created a Zazzle store because people ask us "Is there IH Awareness Week merchandise to buy?". We keep the prices as low as we can so that people have IHAW items to buy. We do not make any profit (we have made none to date*). If we did make any money from our Zazzle store it will go directly to keeping the Worldwide Idiopathic Hypersomnia Awareness Week® going. We can create just abo
Update in this research below. Idiopathic hypersomnia (IH) is a poorly understood disorder, characterised by excessive sleep and daytime sleepiness. It has a severe impact on quality of life.
An article published in the Sleep Research Society’s journal, SLEEP reports the first neuroimaging study of Idiopathic Hypersomnia, showing altered brain perfusion in regions modulating sleep-wake states. “These preliminary findings suggest that idiopathic hypersomnia is characterized b
Understanding how a chronic illness affects someone is difficult for anyone that doesn't experience it so for the 2018 Idiopathic Hypersomnia Awareness Week® we wanted to do our best to show people what living with IH is like through the thoughts and stories of people living with Idiopathic Hypersomnia.
Idiopathic Hypersomnia tired is not normal people tired. "To start with when normal people are tired it’s generally because they are sleep deprived or their sleep quality is
MEDIA RELEASE For immediate release 1 August 2018 6th annual international Idiopathic Hypersomnia Awareness Week® runs from 3th through to 9th September. Idiopathic Hypersomnia (IH), sometimes referred to as Idiopathic Hypersomnolence, is a neurological sleep/wake disorder characterised by excessive sleep and daytime sleepiness. Most people can feel tired, fatigued and at times, excessively sleepy, particularly when they do not get enough sleep. However what sets people with
We are pleased to introduce the 2018 Idiopathic Hypersomnia Awareness Week® Ambassadors. We are fortunate to again have representatives from a few different countries. They bring to the role a range of perspectives and experience. Let's meet them! Susanna Barber
Northumberland, UK Susanna has a love of people and animals. She has spent many years working with horses in roles that include grooming, a jockey, event rider as well as a yard manager. Sadly, due to IH she has had t
Have you or someone you know been diagnosed with Idiopathic Hypersomnia (sometimes referred to as Idiopathic Hypersomnolence)? Are you finding it difficult to understand or having trouble explaining it to others? Or are you a medical professional looking for a good quality resource for your patients?
Hypersomnolence Australia (HA) has produced an information brochure for Idiopathic Hypersomnia. Our brochure was written by HA's director Michelle Chadwick and has been vetted a
I bet every single person with Idiopathic Hypersomnia can relate to this “But what you don’t know is that I pass on many experiences and opportunities because I am sick. Some things are too difficult, some things are not worth it, and some things could be detrimental to me. What you don’t know is that having a chronic illness is like losing every part of what made you who you are. Sometimes I feel like I’m reaching out for a tiny thread that is tied to life — not life itself