RESEARCH STUDY - Physical Activity and Hypersomnolence
Can Physical Activity Help Manage Narcolepsy and Idiopathic Hypersomnia? Researchers at the University of Sydney are conducting a...
top of page
ADVOCACY EDUCATION AWARENESS
for IDIOPATHIC HYPERSOMNIA
Est 2013, Celebrating 10 years as the world's first not for profit charity dedicated specifically to Idiopathic Hypersomnia
Follow us
NEWS
FEATURED POSTS
Michelle Chadwick
- Mar 9
- 3 min
What is Cognitive Behaviour Therapy for Hypersomnia (CBT-H), and can it help you?
What is Cognitive Behaviour Therapy for Hypersomnia (CBT-H), and can it help you? Find out with Dr Sara Winter
Michelle Chadwick
- Mar 2
- 4 min
Celebrating 10 years as the world's first not for profit charity for Idiopathic Hypersomnia
Hypersomnolence Australia is celebrating 10 years as a Not for Profit Health Promotion Charity raising awareness, providing support, and...
Michelle Chadwick
- Feb 21
- 2 min
Fundraising Made Easy with Ritchies IGA & Drakes Supermarkets
We have nominated Ritchies IGA and Drakes Supermarkets as our Fundraising Partners. Help Hypersomnolence Australia help you! Recruit...
Michelle Chadwick
- Feb 13
- 3 min
Nutrition and Diet with Jessica Turton
Our first special guest speaker was Jessica Turton. Jessica is a qualified practicing dietitian and nutritionist, Phd Student, and founder o
Michelle Chadwick
- Sep 5, 2022
- 3 min
Top 12 Tips for Living with Idiopathic Hypersomnia
Top 12 Tips for Living with Idiopathic Hypersomnia. Practical advice for Patients, Carers, and treating Doctors.
Michelle Chadwick
- Sep 2, 2022
- 7 min
Idiopathic Hypersomnia - Advocacy and Awareness
During the Idiopathic Hypersomnia & Narcolepsy Education Day in April this year, we discussed what was needed for Idiopathic Hypersomnia...
Michelle Chadwick
- Aug 22, 2022
- 2 min
Idiopathic Hypersomnia Awareness Week 2022
The 10th annual Worldwide Idiopathic Hypersomnia Awareness Week (IHAW) is only two weeks away! Find out how you can get involved.
Michelle Chadwick
- May 10, 2022
- 2 min
Idiopathic Hypersomnia & Narcolepsy Education Day VIDEOS
Idiopathic Hypersomnia & Narcolepsy Education Day WATCH the videos!
ALL POSTS
Search
What can you do to help raise awareness?
Worldwide Idiopathic Hypersomnia Awareness Week. Find some easy ways that you can help raise awareness.
Where did the name Idiopathic Hypersomnia come from?
Every year on what would be his birthday, March 23rd, we honour a man who dedicated his life to medicine and science. Prof Bedrich Roth (1919-1989) was a renowned neurologist responsible for identifying and naming Idiopathic Hypersomnia. His seminal works over many years on narcolepsy and hypersomnia have left an indelible mark on the history of sleep medicine. Roth is credited as being a true pioneer in the area of narcolepsy and hypersomnia due to the valuable epidemiologic
Dr Hugh Mestitz is retiring what now?!
There has been some concern about Dr Hugh Mestitz's imminent retirement.
For those that don't know Dr Mestitz has treated people with narcolepsy and idiopathic hypersomnia at Hobart Royal Hospital for many years and the fear is that with his retirement people will need to travel to Melbourne for their ongoing treatment and care.
I contacted Dr Mestitz today and I can assure you that he is not going to leave any of his patients in the lurch. He has assured me that no one wi
House of Representatives standing committee report on sleep health.
On 23 November I wrote a post Inquiry into Sleep Health Awareness in Australia that announced that the House of Representatives Standing Committee on Health, Aged Care and Sport had commenced an Inquiry into Sleep Health Awareness in Australia. The Committee invited submissions from the public to its inquiry. As the Executive Director of Hypersomnolence Australia and Director of Sleep Disorders Australia, I was invited to the public hearing that was held at Parliament House,
Rare Disease Day 2019
Rare Disease Day 2019 is an opportunity to be part of a global call on policy makers, healthcare professionals, and care services to better
Dr Rye HF Conference 2018
On the 6 October we shared a video on our social media of Dr. David Rye’s presentation at the 2018 Hypersomnia Foundation Conference. If you missed it you can view it here Dr Rye spoke of the progress on many fronts including awareness, diagnostics and causes. He highlighted the increased attention at international sleep conferences including the World Sleep Congress 2017 where there was a very well attended symposium on Idiopathic Hypersomnia. Prof Karel Sonka used my Idiopa
Thank you!
The #IHAW2018 was another huge success! We reached hundreds of thousands of people across various social media platforms, our website and through print media and also radio. Thank you to everyone that interacted with (ie: shared, liked and commented) our posts. And a special thank you to those of you that went above and beyond to show your support. It doesn’t go unnoticed so I apologise if I don’t mention you here.
Thank you to this year’s ambassadors and to our five genero
Is there an Idiopathic Hypersomnia Awareness Week® T-Shirt?
Interested in Idiopathic Hypersomnia Awareness Week® merchandise? We have a Zazzle store! We created a Zazzle store because people ask us "Is there IH Awareness Week merchandise to buy?". We keep the prices as low as we can so that people have IHAW items to buy. We do not make any profit (we have made none to date*). If we did make any money from our Zazzle store it will go directly to keeping the Worldwide Idiopathic Hypersomnia Awareness Week® going. We can create just abo
Study suggests possible trait unique to Idiopathic Hypersomnia
Update in this research below. Idiopathic hypersomnia (IH) is a poorly understood disorder, characterised by excessive sleep and daytime sleepiness. It has a severe impact on quality of life.
An article published in the Sleep Research Society’s journal, SLEEP reports the first neuroimaging study of Idiopathic Hypersomnia, showing altered brain perfusion in regions modulating sleep-wake states. “These preliminary findings suggest that idiopathic hypersomnia is characterized b
Thoughts and stories by people living with Idiopathic Hypersomnia
Understanding how a chronic illness affects someone is difficult for anyone that doesn't experience it so for the 2018 Idiopathic Hypersomnia Awareness Week® we wanted to do our best to show people what living with IH is like through the thoughts and stories of people living with Idiopathic Hypersomnia.
Idiopathic Hypersomnia tired is not normal people tired. "To start with when normal people are tired it’s generally because they are sleep deprived or their sleep quality is
Search
bottom of page