6-12th SEPTEMBER 2021

The most important annual event for Idiopathic Hypersomnia is the Worldwide Idiopathic Hypersomnia Awareness Week® hosted by Hypersomnolence Australia. It is held annually in the first full week in September.

 

The Idiopathic Hypersomnia Awareness Week®’s social media is the central hub for the Idiopathic Hypersomnia Awareness Week event so make sure to "like" our Facebook page, and follow us on Twitter and Instagram

 

It is the mission of Worldwide Idiopathic Hypersomnia Awareness Week® to raise awareness and to help improve the level of education of Idiopathic Hypersomnia among the general public, people with Hypersomnia, and medical professionals. Idiopathic Hypersomnia Awareness Week® is hosted by Hypersomnolence Australia and actively encourages other people and organisations to join in this effort. After all, we have similar goals and we champion this cause for the same reasons. We believe the key to success is a unified voice under one banner.

The IHAW is a truly worldwide event. We have worked with Ambassadors in the US, Canada, UK, Europe, Japan, and Australasia. 

 

If you are an individual, group, or organisation and would like to hold an appropriate awareness event you can register your event by completing this form. 

 

The Idiopathic Hypersomnia Awareness Week is a Worldwide collaborative event. If there are any individuals or organisations that would like to get involved or share their ideas please contact us at ihaweek@gmail.com

What can you do to help raise awareness_

The Idiopathic Hypersomnia Awareness Week® is a registered Trademark in the United States and Australia and is recognised throughout the world as Idiopathic Hypersomnia's most significant annual awareness raising event. We are a non-profit organisation that does not receive funding and we do not charge membership. To allow us to continue to host this very important event we need your help! 

How does the IDIOPATHIC HYPERSOMNIA AWARENESS WEEK® Logo represent Idiopathic Hypersomnia?

The wavy line means more than you might think!


While there may not yet be any biomarkers or other clinical tests that can confirm Idiopathic Hypersomnia various research over the years shows that people with Idiopathic Hypersomnia, (particularly the complete form) often have more “slow wave sleep” (also referred to as “deep sleep”) than the average person.

Delta waves, like other brain waves, are recorded by EEG during
an overnight sleep study (polysomnogram). Delta waves are usually associated with the deep sleep experienced during stage 3 of NREM sleep, also known as slow-wave sleep (SWS). Below is an example of what delta waves look like during Slow Wave Sleep (stage 3).

I guess you can see now how we came up with the image in our logo but did you notice that the shape of the “delta waves”  in the IHAW logo depicts a horizontal face?

The IDIOPATHIC HYPERSOMNIA AWARENESS WEEK® logo represents Idiopathic Hypersomnia in two ways. The delta waves represent the typical increased slow wave sleep experienced by people with Idiopathic Hypersomnia and the horizontal sleeping face is representative of the people with Idiopathic Hypersomnia.

Talinka Hill is the graphic designer responsible for the IDIOPATHIC HYPERSOMNIA AWARENESS WEEK® logo. We are extremely grateful to her for volunteering her time and talent to this project.

Find us on Facebook, Twitter
and Instagram

  • Facebook
  • Twitter
  • Instagram
ADD A FACEBOOK FRAME TO YOUR PROFILE PIC
 Click on one of the two below. 
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WE ALSO HAVE A FACEBOOK COVER PHOTO
Check out the IHAW FACEBOOK PAGE

Sharing your experiences not only helps to raise awareness and educate others about what living with Idiopathic Hypersomnia is like it can also be empowering and can help light the way for those who are walking a similar path.

Go to our Living With IH page to read stories and perspectives shared by people living with Idiopathic Hypersomnia. 

Click on a sign below to download a copy.
Take a photo of you holding it and share it online.

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Write in the space in the middle what living with Idiopathic Hypersomnia is like for you.
Take a photo of you holding it and share it online with #LivingWithIdiopathicHypersomnia

2021 Living with Idiopathic Hypersomnia

The example below is Angel during IHAW2020 

When sharing your photos use #LivingWithIdiopathicHypersomnia and/or #IHAW #IdiopathicHypersomniaAwareness 
You can also send us your photo and we will share it on our social media too! 
 

IHAW TShirts come in white or grey

 

If you are in Australia please order via the HA Store. $28, includes standard postage.
 

If you are in the US TShirts are $25US*, includes standard postage.
If you are in the UK TShirts are £18.50*, includes standard postage.

*We do not make any money from our TShirts. They are custom ordered. What you pay is what the supplier charges us so the price is subject to change. 

If you would like to buy one please email us at ihaweek@gmail.com.
Please DO NOT order via HA'S Store.

Please let us know if you would like white or grey and also your delivery address and contact phone number. We will reply with your local size chart and details for payment. Payment is made via a secure PayPal link. 

If you live elsewhere in the world and would like to buy a TShirt please email us your delivery address, including whether you would like white or grey and we will reply with a price. 

View and Download a copy of Hypersomnolence Australia's Idiopathic Hypersomnia Factsheet

You can also download a copy of Hypersomnolence Australia and Hypersomnia Foundation Idiopathic Hypersomnia Trifold Brochures.

Summary pages are available for each of the past Awareness Weeks: IHAW2020IHAW2019IHAW2018,  IHAW2017IHAW2016

For a summary of the IHAW from 2013 -2015 click here.

Images to download and share

There are more images you can share on the other IHAW pages - links above and also on our Living with Idiopathic Hypersomnia page

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Norwegian                                                          Indonesian                                                         Dutch 
Japanese                                                     Portuguese                                                             Hebrew
Spanish                                                              Italian                                                              German
French                                                              Finnish                                                                    
We would like to thank all those in the Idiopathic Hypersomnia community that helped translate our posters.
Dr Makoto Honda - Japanese                                 Dr Meillyssa Chandra Hutabarat - Indonesian       Tom Helge Rasmussen Uhlen - Norwegian 
Dr Andréia Welter - Portuguese (Brazil)                  José Silveira and Charo Rey - Spanish                 Stav Rokach - Hebrew        
Massimo Zenti and Fabio Cecchinato - Italian          Seline Stokkelaar - Dutch                                   Anna Paczulla - German

Alexandra Katharina Nothnagel - French                 Milo (HiisikoloART) - Finnish

If there is a language that you can help us translate our posters into please email us at ihaweek@gmail.com               
 

What is Idiopathic Hypersomnia? Hva er idiopatisk hypersomni?