The theme of the 2019 Idiopathic Hypersomnia Awareness Week is

Living with Idiopathic Hypersomnia – is only part of my story…
 

Idiopathic hypersomnia (IH) can be so consuming that we can sometimes forget that we are much more than IH. We want to remind people that IH doesn’t define them. We want to celebrate what people with Idiopathic Hypersomnia can do! 

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We also want to encourage and give hope to those who think they will never be able to hold a job successfully or to have a family or achieve anything meaningful. We want them to know that others have and they can too.

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Working, raising children, volunteering, having a social life and doing their best to manage a household and everything else in their life while battling a debilitating neurological sleep wake disorder that too few people understand isn’t easy but many people with IH do. For many of them, it took time to learn how to adapt to and accept their limitations and to embrace what they can do but once they overcame those hurdles they found managing their condition became easier – or certainly less of a struggle.

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We want the public to know that there are people with IH in their communities. We are scientists, teachers, business people, students, police officers, mums and dads, and even politicians. We are all working to the best of our ability to achieve our goals and ambitions against at times, insurmountable odds. #livingwithidiopathichypersomnia
 

 

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